Research Article
Identifying Social Care
Research Literature: Case Studies From Guideline Development
Claire Stansfield
Senior Research Associate
Evidence for Policy and
Practice Information and Coordinating (EPPI-) Centre
Social Science Research
Unit, UCL Institute of Education, University College London
London, United Kingdom
Email: c.stansfield@ucl.ac.uk
Kristin Liabo
Senior Research Fellow
University of Exeter Medical
School
Exeter, United Kingdom
Email: k.liabo@exeter.ac.uk
Received: 24 Nov. 2016 Accepted:
22 June 2017
2017 Stansfield and Liabo.
This is an Open Access article distributed under the terms of the Creative
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which permits unrestricted use, distribution, and reproduction in any medium,
provided the original work is properly attributed, not used for commercial
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same or similar license to this one.
Abstract
Objective – Systematic searching is central to guideline development, yet
guidelines in social care present a challenge to systematic searching because
they exist within a highly complex policy and service environment. The
objective of this study was to highlight challenges and inform practice on
identifying social care research literature, drawing on experiences from
guideline development in social care.
Methods – The researchers
reflected on the approaches to searching for research evidence to inform three
guidelines. They evaluated the utility of major topic-focused bibliographic
database sources through a) determining the yield of citations from the search
strategies for two guidelines and b) identifying which databases contain the
citations for three guidelines. The researchers also considered the proportion
of different study types and their presence in certain databases.
Results – There
were variations in the ability of the search terms to capture the studies from
individual databases, even with low-precision searches. These were mitigated by
searching a combination of databases and other resources that were specific to
individual topics. A combination of eight databases was important for finding
literature for the included topics. Multiple database searching also mitigates
the currency of content, topic and study design focus, and consistency of
indexing within individual databases.
Conclusion – Systematic searching for research evidence in social care requires
considerable thought and development so that the search is fit for the
particular purpose of supporting guidelines. This study highlights key
challenges and reveals trends when utilising some commonly used databases.
Introduction
As people are living longer with more complex
conditions, there is a need for a more integrated health and social care
system. In 2012, the National Institute for Health and Care Excellence (NICE)
in England broadened its remit on health to develop national quality standards
and guidelines for social care. The NICE Collaborating Centre for Social Care
was set up in 2013 and has addressed cross-cutting themes spanning health and
social care through the provision of guidelines. Social care "generally refers
to all forms of personal care and other practical assistance for children,
young people and adults who need extra support" (NICE, 2014, Glossary).
The NICE guidelines contain recommendations for individual health and social
care practitioners, local authorities, health and social care commissioners,
providers of services, and other organizations (NICE, 2014). The procedures for
developing social care guidelines were informed by the processes used for
clinical guidelines. Guideline committees develop the guidelines and are
supported by evidence review teams, who undertake systematic literature
searches and review the best available evidence (NICE, 2014).
Both health and social care service fields contain
complex systems, and there are similarities in reviewing research evidence in
these areas. However, as part of developing social care guidelines, important
differences in the respective research traditions meant that reviewers and
information scientists in the new collaborating centre had to consider whether a
unique approach was needed. The purpose of this study is to focus on lessons
learned from the systematic searching undertaken to support the evidence
reviews that inform the development of guidelines. Drawing on analyses of three
searches for social care guidelines, we describe some challenges and reflect on
the utility of these searches. The three guidelines focused on social care
support for people across three distinct topics: 1) home care—delivering
personal care and practical support to older people living in their own homes
(NICE, 2015); 2) transition between inpatient mental health settings and
community or care home settings (NICE, 2016b); and 3) transitions from
children’s to adults' services for young people using health or social care
services (NICE, 2016a). The latter two guidelines also covered support for
people using health services.
Literature Review: The Peculiarities of Searching for Social Care
Research
Challenges of seeking diverse literature for
guidelines have been recognised in public health (Levay,
Raynor, & Tuvey 2015).
Like public health, social care sits in between other services by its very
nature and purpose. This is reflected in the research literature, which uses a
diverse terminology and is published within a range of disciplines, such as
social sciences, health, criminal justice, and housing (Clapton, 2010). The
literature is varied in format, with reports and unpublished literature making
up a significant proportion (Clapton, 2010). To account for this, Golder,
Mason, & Spilsbury (2008) suggest searching a
number of different sources that cover different disciplines and using broad
search strategies that encompass many variants of terminology. A number of case
studies in this field recommend that social care systematic reviews utilise
databases drawn from the broad fields of health, social sciences, and social
care or those that contain multidisciplinary sources (Brettle
& Long, 2001; Clapton, 2010; Golder et al., 2008, McElhinney,
Taylor, Sinclair, & Holman, 2016; McFadden, Taylor, Campbell, & McQuilkin, 2012; McGinn, Taylor, McColgan,
& McQuilkan, 2016; Steventon,
Taylor, & Knox, 2016; Taylor, Wiley, Dempster,
& Donnelly, 2007; Taylor, Dempster, &
Donnelly, 2003). Clapton (2010) found that a minimum of seven or eight databases
needed to be searched to capture the relevant references for three reviews on
looked-after children (children under care), and the exact selection of
databases is highly dependent on topic. McGinn et al. (2016) show that it is
difficult to predict the best databases across several social care topics.
National context is also important. The reviews studied by Clapton (2010)
informed a UK context, and she suggests searching UK-focused databases to add
local context and reduce North American bias from commonly used databases.
Developing search strategies to capture the diverse
terminology and research literature within social care literature is therefore
a challenge. Steventon et al. (2016) considered
approaches for a search about risk communication and risk concepts in dementia
care. They found that care as a
concept was too diffuse as it encompassed location of care, types of carer,
range of professionals involved in care, specific care services, quality of
care, service policy, and practice issues. Golder et al. (2008) observe that
alternatives for the term carer
include phrases such as husbands
supporting their wives or children
caring for their elderly relatives, and there may be specific terms for
paid and unpaid staff, (e.g., care worker
or volunteer). They also note
national differences, whereby the term carer
is common in the United Kingdom, but caregiver
or caretaker are terms used in the
United States.
Given that social care research is considered
difficult to identify, it is of interest to assess how well systematic searches
locate what is present within a database. A thoughtful search strategy
"considers the aim of searching, ensuring that the appropriate methods are
used; what the most relevant sources of studies are likely to be; the benefits
and drawbacks of searching each source; the resources available; ...
appropriate search terms; and the benefits and costs of different combinations
of sources within the available resources" (Brunton,
Stansfield, Caird, & Thomas, 2017, p. 105). The
case studies referred to above are based upon analysis of search results to
assess which studies were identified from which database. While these findings
help to indicate a database's usefulness to individual topics, they depend on
the search strategies used.
More informative is the analysis by Golder et al.
(2008) for a review on the effectiveness of respite care for carers of frail
older people. They found that for the majority of databases their search
strategies failed to retrieve some relevant references that were stored in
these databases, despite using a very broad search. Reasons were that the
bibliographic details lacked one of the concepts in their search, one of the
concepts was expressed using ambiguous phrases, or records did not contain
abstracts. They found that the studies from their review could be identified
using their search strategy on six databases (AgeLine,
EMBASE, Health Management Information Consortium (HMIC), MEDLINE, PsycINFO, Social Sciences Citation Index (SSCI)) plus
reference checking and contacting authors. They checked which databases
contained these studies and found that the same six sources collectively
contained all the included references. The search strategy used in their
systematic review identified unique references (i.e., items found from only one
of the resources searched) in four databases: AgeLine,
EMBASE, PsycINFO, and SSCI. The authors found that
reference checking and contacting authors are also valuable sources of unique
relevant references and provide materials not available through the use of
databases.
A similar investigation by Bayliss
& Dretzke (2006) found that in seven out of nine
databases investigated, their searches failed to locate relevant studies that
were present for a technology assessment report on a parenting intervention.
Reasons included: the bibliographic details lacked either the study design or
subject elements used in their search, the index terms searched, and the
absence of abstracts. The difficulty of missing items is not limited to social
care. In analyzing the citations of nine systematic
reviews of diagnostic test accuracy, Preston, Carroll, Gardois,
Paisley, & Kalthenthaler (2015) found 11% of
citations were indexed in either MEDLINE or EMBASE but were not retrieved by
the searches used for each review. We are aware that search strategies can
never be perfect and will never retrieve every relevant reference (Brettle et al., 1998, Brunton et al., 2017, p. 98), and
other constraints include the time and resources available to search (Brunton
et al., 2017, p. 97). While the balance between sensitivity and precision in
systematic searches needs to be grappled with across various research fields,
we suggest social care searching merits further investigation, based on the
literature reviewed here and our own experiences of working on social care
guidelines as well as systematic reviews in health and education.
Aims and Objectives
This study aims to draw on the experiences of
identifying social care research for three guideline topics in order to
highlight challenges and inform practice. We write from the perspectives of an
information scientist charged with designing the searches based on the scope of
the guideline and a reviewer charged with screening citations and appraising
included studies. We hope that by analyzing the
utility of our own approaches we can share knowledge on how social care
searching can be developed further. Specifically, our objectives are to:
a)
reflect on the
challenges of searching for three guideline topics; and
b)
evaluate the
utility of major topic-focused bibliographic database sources for identifying
research.
Methods
Overview of
the Approach to Literature
Searching for the Three Guidelines
Each guideline was preceded by a referral to the NICE
Collaborating Centre for Social Care, based on a population need identified
through policy and practice. This referral was developed into a scope following
consultation with stakeholders. The scope outlines the importance of the topic
and the remit of the guideline in terms of populations, settings, and
interventions. As part of developing the guidelines, each topic contains
approximately seven sets of research questions relating to the effectiveness of
interventions, people’s experiences of them, and barriers and facilitators to
service delivery or interventions. Table 1 provides examples of each type of
research question for each topic.
Each literature search utilized over 20 bibliographic
databases comprising international and UK-focused health, social science,
social care, and economic databases. The searches were supplemented by mainly
UK-focused website searches, specialist registers, and catalogues, some
citation searching, and contributions from the guideline development team. The
search resources differed across the three topics, and the analysis presented
here focuses on general databases in health, economics, social sciences, and
social care. The full search strategies and reviews are reported elsewhere
(NICE, 2016a, 2016b, 2015). The original database searches were updated after
one year to identify new research on the effectiveness of interventions. The
searches were followed by screening and appraising studies for relevance to the
review questions. Studies deemed relevant to the review questions were then
included to inform recommendations within the guidelines.
Table 1
Examples of Types of Research Questions for Each
Guideline
Types of research questions |
Guidelines |
||
Home care: delivering personal care and practical support to older
people living in their own homes |
Transition between inpatient mental health settings and community or
care home settings |
Transition from children’s to adults' services for young people using
health or social care services |
|
Effectiveness of the interventions |
What approaches to home
care planning and delivery are effective in improving outcomes for people who
use services? |
What is the
effectiveness or impact of interventions, components of care packages, and
approaches designed to improve discharge from inpatient mental health
settings? |
What is the
effectiveness of interventions designed to improve transition from children’s
to adults’ services? |
People’s experiences |
What are users’ and
family carers’ experiences of home care? |
What are the views and
experiences of people using services in relation to their admission to
inpatient mental health settings from community or care home settings? |
What are young people’s
experiences of transitions? What works well? |
Barriers and facilitators to specific interventions |
What are the significant
features of an effective model of home care? |
How do different
approaches to assessment, care planning, and support (including joint
working) affect the process of admission to inpatient mental health settings
from community or care home settings? |
What factors help and
hinder purposeful and planned transitions from children’s or adolescents’ to
adults’ services, as identified by young people, their families and carers,
practitioners, and research? |
Table 2
Databases Searched and the Database Platform
Database |
Platform |
British Education Index
(BEI), CINAHL Plus, Econlit, ERIC, MEDLINE |
EBSCO |
British Nursing Index
(BNI) |
HDAS |
AMED, EMBASE, MEDLINE, PsycINFO, Health Management Information Consortium
(HMIC), Social Policy and Practice (SPP) |
Ovid |
ASSIA, ERIC,
International Bibliography of Social Sciences (IBSS), Library and Information
Science Abstracts (LISA), PAIS, PILOTS, Sociological Abstracts, Social
Services Abstracts, Worldwide Political Science Abstracts (WPSA) |
Proquest |
Social Sciences Citation
Index (SSCI) |
Web of Science |
Methods of
Analysis
The search protocols and key internal documents
related to developing the search strategies for each guideline were revisited.
Common challenges were identified, and key ways to address these were noted.
A three-step process was used to investigate the
utility of database sources. First, for two of the guidelines (child to adult
services and mental health setting transitions) the citations used to provide research
evidence were traced back to their original sources. These two guidelines
contained 81 and 71 citations, respectively. The citations were checked against
the original search results prior to duplicate checking and prior to the update
searches. For the homecare guideline, citations located outside databases were
also investigated. Second, the presence of the 225 citations from all three
guidelines was checked in 20 major topic-focused bibliographic databases at
least one year after the original searches. This was undertaken by searching
the fragments of titles for each citation. Databases hosted within the same
platform were searched together and are listed in Table 2. These include many
of those that had been searched for each topic plus some additional databases.
These databases were selected for being important topic-focused databases and
convenience of analysis. Third, the sources of the original searches and the
studies present within the databases were compared for two guidelines, and we
observed some reasons for disparities across selected citations.
Analysis was undertaken using the systematic review management tool, EPPI-Reviewer 4 (Thomas, Brunton & Graziosi, 2010). EPPI-Reviewer 4 is a web-based electronic
software for managing systematic reviews that is based on hundreds of reviews
supported by or conducted at the EPPI-Centre (http://eppi.ioe.ac.uk/cms). It facilitated the assigning and analysis of codes
for each citation relating to review questions, study designs, and databases.
Results
Designing the
Search Strategies for the Three Guidelines
As part of the guideline development process, the
information scientist developed searches that aimed to be sensitive in
retrieving most of the studies available but balanced with retrieving a
manageable number of citations to screen. As the guidelines were led by a
stringent timeframe, comprehensiveness of searches needed to be balanced with
the time available to complete the reviews, which included the reviewers’ need
for time to screen and review studies. The number of records screened from the
database searches ranged from around 14,500 to 21,400 per topic, after removal of duplicates. The number of citations of
studies that were used to inform each guideline ranged from 71 to 81 per topic,
which equates to an individual search precision of under 0.6%.
Table 3
Common Challenges and
Selected Examples Across the Guidelines
Challenges |
Guidelines |
||
Homecare for older people |
Transition between mental health inpatient and community settings |
Transition from children’s to adults’ services |
|
Population encompasses individuals
to organizations or settings |
Individual homecare staff and social care agencies |
Individual patients returning home and service transitions such as
secondary care to primary care |
Young people transitioning and children’s and adult health and social
care services |
Some relevant controlled
vocabulary have broader focus than the topic and some MeSH
term examples |
Home nursing |
Discharge Continuity of patient care |
Patient transfer Continuity of patient care Patient care planning |
Irrelevant studies retrieved
in test searches |
Clinical studies on home nursing in medical databases |
Studies on prevalence or characteristics of the population |
Transition has multiple meanings (e.g., physical and emotional
development; life change transitions, such as parenting, education and
employment) |
Table 3 summarizes, with
selected examples, some of the challenges in developing a search strategy. A particular challenge for the guideline topics
described here was that their titles and referrals did not follow a traditional
PICO structure (population, intervention, comparator, outcome), and neither did
many of their questions. Most notably, no topic operated with specific outcomes
for the interventions and all included open-ended questions. To address this,
the information scientist aimed to work closely with the reviewers to clarify
ambiguous aspects of the scope and the review questions. For each guideline,
the concepts common to each review question, such as populations and setting or
context, were identified. In these instances, it was possible to construct one
literature search to address the review questions for each guideline topic. A
diverse range of search terms were needed for each concept and developed from
several test searches.
Across all topics, the population concept encompassed
various groups of individuals and organizations. For example, the population concept in the homecare topic
included older people, homecare staff, carers, social services, or integrated
services. For the mental health setting transitions topic, the population was
informed by the setting; it included people who were either entering or leaving
inpatient mental health settings. Relevant literature might describe the
population in terms of people with a mental health disorder and indicate that
they are in hospital, or it might describe the mental health unit.
A second concept was used in each topic. For the two topics
on transitions, this involved a setting element (such as discharge from
hospital to home or moving to adult services), but it also involved a process
of transition and included interventions, such as transition planning or
treatment education. For homecare, this concept related to the setting and
intervention (e.g., care in the home). Articulating this second concept was
challenging for all topics owing to the diversity of terminology present in
relevant literature.
There was also a problem of context. In the topic on
child to adult services, the focus was on care transitions in both in health
and social care services. However, transition
is also a term used to describe facets outside this focus. For example, it can
mean transition in terms of adolescent physical and emotional development or
life changes, such as parenting, educational achievement, and employment. As
some literature about education and developmental transitions is interlinked
with research on care transitions, the former topics could not be automatically
excluded from the search. To help counter this, a broad range of qualifying
terms was used in the free-text searches so that transition had to appear with
terms that were indicative of care or transition planning (e.g., care, pathways,
readiness, failures, or schemes). Where possible, proximity searching was used,
which involved deciding on an arbitrary distance of words between transition
and other relevant search terms. For this topic, we decided not to search
education databases, but we searched and browsed UK government websites related
to the education system for relevant research relating to health and social
care service transitions.
The focus of transition between two settings or
inpatient mental health settings and community was particularly challenging to
articulate. As well as discharge, admission, or transition, there could be a
variety of ways to describe the process, such as a person leaving hospital,
moving home, returning to the community, or receiving aftercare services. There
could also be a change of service provider, such as moving between primary and
secondary care. A range of free-text and controlled terms was used to capture
this literature for individual and service level transitions in a focused way.
Some relevant controlled vocabulary terms tended to
have broader focus than the topic. For example, the Medical Subject Heading (MeSH) term Continuity
of Patient Care was used in both transitions topics. Controlled vocabulary
focused on transitions to services is usually absent. The MeSH
term Transition to Adult Care was
introduced in 2012. To identify earlier literature, the MeSH
terms Continuity of Patient Care, Patient Handoff, Patient
Transfer, and Patient Care Planning
were each used in combination with MeSH terms for
children and adolescent services. To increase search precision, the MeSH term Patient
Care Planning had to occur with the term Adult in the title or abstract.
All searches retrieved large numbers of irrelevant
studies, and we took steps to reduce this. For mental health setting
transitions an inclusive study design filter was used in databases that yielded
very large search results to capture trials, cost-effectiveness and qualitative
studies, and research on people’s views or opinions on services. The purpose
for using the filter was to reduce the yield of studies on prevalence or
describing specific characteristics of the population. We decided to search the
education databases British Education Index and ERIC using a focused search
that aimed to capture studies on students returning to school following time in
hospital without capturing literature
about educational transitions. One particular difficulty that could not
be resolved in the homecare topic was being unable to distinguish between
clinical studies and social care in large health databases. The MeSH term Home
Nursing was relevant to the homecare topic but also captured clinical
aspects of homecare beyond the guideline focus. For the child to adult services
topic, we initially considered using recently published systematic reviews to
avoid duplication of effort, but this was not possible during the searching and
screening stages as the existing reviews we found did not fully cover a group
of interest or some aspects of interest for that group. For example, while
there was good coverage on effectiveness and views in some health settings,
this material did not provide evidence on related areas, such as barriers and
factors to specific interventions. There also seemed to be a gap in reviews on
social care transitions for young people with physical disabilities. In
compiling the evidence for the guideline, once screening had taken place, some
findings of systematic reviews were considered collectively where appropriate.
It was important that appropriate database and website
sources were searched to reflect the range of sectors, settings, and outcomes
within the scope of each individual guideline. We supplemented database
searches by browsing searching on websites for different population groups.
Table 4
Citations Found From the Systematic Review Searches
for Two Guidelines
Database |
Child to adult services
n=81, % (number unique) |
Mental health setting
transitions n=71, % (number unique) |
ASSIA |
14 |
14 |
BNI |
20 (1) |
17 (3) |
CENTRAL |
1 |
34 |
CINAHL |
30 |
n/a |
CINAHL Plus |
n/a |
38 (1) |
DARE |
2 |
0 |
Econlit |
0 |
0 |
EMBASE |
41 (1) |
44 |
ERIC |
n/a |
1 (1) |
HMIC |
5 (2) |
14 |
IBSS |
1 |
3 |
MEDLINE |
48 (5) |
59 (3) |
NHS EED |
0 |
3 |
PsycINFO |
35 (5) |
56 (2) |
SSCI |
40 (1) |
44 (2) |
SPP |
31 (7) |
11 (2) |
Social Services
Abstracts |
2 |
3 |
Social Work Abstracts |
0 |
0 |
Sociological Abstracts |
1 |
0 |
ZETOC |
n/a |
4 (1) |
NSPCC Inform |
4 |
n/a |
Other sources (unique) |
14 (websites, trials
registry, early scope work) |
6 (citation searching,
trials registry, websites) |
One way to manage the time needed to conduct the
evidence reviews was to only include studies published after a particular date.
These varied across the guideline topics and for individual questions. Individual
evidence reviews were sometimes limited to the UK context. Decisions on such
restrictions were in agreement with the Guideline Committee for that topic,
were used where deemed appropriate for a specific reason (such as changes in
practice), and were used after searching and screening had taken place. The
actual searches were carried out at the farthest time point and not limited by
geography. Language exclusions were applied within the databases as the final
step in the search for two topics so that the number of citations prior to this
exclusion was transparent.
References
Identified by the Search Strategies for Two Guidelines
Table 4 shows the yield of relevant citations
identified from each resource using the systematic searches for the child to
adult services and the mental health setting transition topics. Nearly all the
databases searched yielded some studies, and comparing both topics, performance
was similar for most of the databases. Notable differences are CENTRAL (the
Cochrane trials database), which was much higher yielding for the mental health
setting transitions topic, and Social Policy and Practice (SPP), which was
higher yielding for the child to adult services topic. EMBASE, MEDLINE, and
SSCI each yielded over 40% of the citations for the child to adult services
topic. For the mental health setting transitions topic, PsycINFO
and MEDLINE, perhaps not surprisingly, yielded over 55% of studies. Social Work
Abstracts and Econlit did not yield any studies. Some
studies were only found in one database, and these databases differed between
the two topics.
Considering the contribution of databases
collectively, the following eight databases yielded 89% (135/152) of studies:
British Nursing Index (BNI), CINAHL, EMBASE, HMIC, MEDLINE, PsycINFO,
SPP, and SSCI. The remaining studies were found from sources outside the
databases listed, plus one study for each topic was found from focused searches
of ERIC and ZETOC. Sources outside bibliographic databases were important for
identifying a small number of studies not located elsewhere, yielding 14% of
citations for child to adult services and 6% of studies for mental health setting
transitions. This contrasts with the homecare topic where 23% were found from
sources outside bibliographic databases.
References
Present Within the Databases for Three Guidelines
Table 5 shows the number of studies present in each
database for the three guideline topics. The majority of studies were present
within these databases. Individual databases containing the most studies varied
by topic. For child to adult services, SSCI, CINAHL, and EMBASE each contained
52% of studies, or 70% collectively (n=57/81). For mental health setting
transitions, PsycINFO contained 90% of studies
(n=64/71), and for home care, SPP contained 77% of studies (n=56/73). A large
amount of overlap exists across the databases. Meanwhile, 10% (n=23/225) of
studies were located only in one of the databases searched. The majority (8%)
of these were from SPP, plus two citations from HMIC, and one from EMBASE. Some
citations were not present in any of the databases searched for the child to
adult services (7%, or six citations) and homecare topics (4%, or three
citations). Twelve citations were found only in one place. Of these, 10 were
from SPP, and two were from HMIC.
For the child to adult services topic, the minimum
combination of databases to get all of the citations was EMBASE, SPP, and PsycINFO. For mental health setting transitions the
combinations were less clear, owing to large overlap between the databases. For
the homecare topic, CINAHL Plus, HMIC, and SPP collectively yielded all the
studies present within the databases. For all of the topics, seven databases
provided 96% (n=215/225) of citations (CINAHL Plus, EMBASE, HMIC, MEDLINE, PsycINFO, SPP, and SSCI). ERIC yielded one unique study,
and the remaining nine studies were not present in any database.
Table 5
Citations Present in Each Database for the Three
Guideline Topics
Database |
Child to adult services,
n=81 % (number unique) |
Mental health setting transitions,
n=71 % (number unique) |
Homecare, n=73 % (number unique) |
AMED |
4 |
11 |
7 |
ASSIA |
19 |
24 |
27 |
BEI |
2 |
1 |
0 |
BNI |
23 |
30 |
14 |
CINAHL Plus |
52 |
65 |
53 |
Econlit |
0 |
0 |
1 |
EMBASE |
52 (1) |
79 |
30 |
ERIC |
9 |
4 (1) |
0 |
HMIC |
11 |
23 |
62 (4) |
IBSS |
1 |
4 |
15 |
LISA |
0 |
0 |
1 |
MEDLINE |
51 |
77 |
32 |
PAIS |
5 |
0 |
1 |
PILOTS |
0 |
1 |
0 |
PsycINFO |
41 |
90 |
22 |
Sociological Abstracts |
1 |
0 |
8 |
SSCI |
52 |
77 |
34 |
Social Services
Abstracts |
7 |
8 |
18 |
SPP |
43 (9) |
21 |
77 (8) |
WPSA |
0 |
0 |
0 |
Not present in any of
these databases |
7 |
0 |
4 |
One of the main differences between health research
and social care is that in health the concept of intervention is well established, and the randomised controlled
trial (RCT) is the gold standard for investigating the role an intervention can
play in service delivery. In clinical guidelines focussing on drug
interventions, the RCT is central and searches on these topics may include
methods filters. These filters exclude studies that do not meet established
standards for health research, thus increasing the precision of searches. In
social care, less work is done on interventions as such.
Instead, many studies investigate approaches and ways
of working, and the role of the RCT is less prominent. Therefore, considering
which study designs were found in which database is relevant (Figure 1). Four
databases yielded over three times more studies on people's views and
experiences than on effectiveness (ASSIA, BNI, SPP, and HMIC). CINAHL and SPP
provided the most studies about people’s views. Studies evaluating cost
effectiveness formed a very small portion of studies, and these were present in
most of the databases. For Figure 1, some of the studies had overlapping
categories, and the Other
category relates to studies concerning factors that help or hinder an
intervention and that do not fit within other study designs.
Figure 1
Citations present within each database for different
study designs, % of total, N=225 (values under 2% are not annotated).
Table 6
Sources Present Within Selected Databases by Study
Type
Study design N=225 |
Cost n=15 |
Systematic reviews n=26 |
Views and experiences n=123 |
Effectiveness n=59 |
Other n=13 |
Total number of
citations retrieved by combination |
CINAHL Plus, HMIC, and
either EMBASE or MEDLINE 100% (15) |
SSCI, PsycINFO, and SPP 96% (25) |
CINAHL Plus, HMIC, SPP,
and SSCI 92% (113) |
CINAHL Plus, EMBASE,
SSCI, and SPP 100% (59) |
Either EMBASE or
MEDLINE, and SPP 100% (13) |
Not present in a
database |
- |
1 |
8 |
- |
- |
Table 6 provides a matrix of database sources and
study designs to help visualize where certain types of studies are located. We
recognize, however, that due to database overlap other possible combinations
could yield the same studies. The data for Table 6 was compiled using the
highest yielding databases for a study design, and the
databases where the unique citations were found.
Comparing the
Performance of the Databases Searches
Anyone who has conducted complex searches across
multiple databases is aware of the curiosities encountered at times due to
spelling mistakes in the original title or abstract or due to indexing
interpretation. Unpicking every thread of idiosyncrasy encountered across these
searches would be extremely time consuming, but a selective picture of why some
citations were not located by the search in some databases was gained for the
child to adult services and the mental health setting transition topics. The reasons
some studies were not located often applied across several databases.
Some studies were not present in the database due to
the time lag of adding publications to a database. From our estimates, this is
less concerning for citations from BNI, HMIC, and MEDLINE, which each had two
items missing due to this issue. The database with the largest time lag issue
was EMBASE (18 citations), followed by CINAHL Plus and SSCI (10 citations
each).
Controlled vocabulary and keywords within individual
databases were important for finding some citations, and this was sometimes the
reason a citation present in multiple databases was identified by our searches
only in one place. For example, one study present in eight databases was found
in only SSCI due to the citation containing the word transition in the keyword plus field. The benefit of controlled
vocabulary is not consistent within databases. For example, our searches in PsycINFO found two citations for the mental health setting
transitions topic, owing to the subject headings Psychiatric Hospital Admission and Psychiatric Hospitalization. The citations were both present in
MEDLINE and SSCI but not located by the search strategy. Conversely, a study
indexed in MEDLINE with the MeSH term Psychiatric Hospitals was not found
using the subject headings within PsycINFO.
Some citations, found in databases elsewhere, were
missed owing to controlled vocabulary and indexing being broader than our
search strategy. For example, three studies were not found in HMIC because our
population terms in the controlled vocabulary were more specific than that
applied by the indexers. We opted not to use the controlled term Transitional Programs in CINAHL owing to
its broader scope than our focus. In SSCI, three studies were not found due to
filtering out studies focused on education without containing health and social
care subjects; however, this approach also reduced the number of references to
screen by around 400. As mentioned earlier, the number of final hits is
important to the reviewers who are charged with screening within a tight
timeframe. Furthermore, screening studies that are situated outside of social
care but imply social care in the abstract is slow and at times difficult.
The use of free-text searching with proximity for
certain words to reduce the number of irrelevant citations resulted in studies
being missed. At least one study was identified in the British Nursing Index
(BNI) that was missed in other databases for the mental health setting
transitions topic. Unlike the other database searches, no proximity was used as
it was easier to translate the search without it and the relative yield of
search results was low. Another reason for missing studies was the absence of
one search concept. For example, one study was not found in SPP because it had
no transition terms.
There were also other limitations from the databases.
Abstracts were absent from citations in some databases but were present in
others. Two citations were not found in HMIC owing to a date limit being
applied to the search, and these two citations did not contain a date in the
date field. (The date was included in another field.) Searching the notes field
in addition to the abstract field would have been helpful for this database.
Furthermore, two items in two databases were found at the time of searching but
were not present when checked at a later date.
Discussion
While some findings are largely technical and
specialist, they have a direct relevance to policy and practice. With the aim
to develop research-based social care and increase our understanding of
cost-effective services in this field comes the need to search efficiently and
effectively for relevant research.
Key Challenges
and Implications
The development of guidelines is largely underpinned
by methods developed within the health field, and following these within a
social care framework can be challenging. Our analysis shows that it is
possible to conduct systematic and useful searches for social care guideline
development within this context. Because most of the questions were driven by
their relevance to practice, it was not clear how well some areas were
researched. Having a potential paucity of literature, coupled with challenges
in identifying it, drove the searches to be sensitive within resource
constraints. This might not be possible to achieve or appropriate for all
social care guidelines.
Designing search strategies for the three guidelines
in this analysis was challenging because they asked a range of questions across
broad topics about both individuals and services and encompassed multiple
outcomes. However, our searches were able to capture most of the evidence from
the collection of databases searched. Collective searches identifying
literature for several questions within each guideline topic meant that fairly
sensitive searches could be undertaken. The contribution of studies sourced
outside databases was fairly low for the topics on child to adult services and
mental health setting transitions. This could be due partly to the sensitivity
of the databases searches and partly that less relevant literature existed
outside the databases. This is surprising, given the challenges encountered in
translating the concepts of transitions into search terms for the database
searches. In contrast, for the homecare topic, 23% of literature was identified
from supplementary searches outside databases, though just 4% of literature was
not actually present in the databases.
Attempts to increase precision of database searches
meant that some citations were missed within individual databases, but our
analysis shows that searching across multiple databases mitigated this problem.
This was aided by the large amount of overlapping and relevant content found
across the databases.
Utility of Major
Topic-Focused Bibliographic Databases
Choosing which databases to search is based on a
number of factors, including likelihood of high yields, unique yields,
convenience to search, sensitivity of the search available, functionality of
the databases, and combination of databases searched. From this study, the
trend points to using MEDLINE for currency and precision of searches: EMBASE,
HMIC, and SPP for unique content; PsycINFO for mental
health topics; BNI for broader searching; and CINAHL for studies on people's
views. SSCI yielded more relevant studies than other social sciences databases
and located some studies not found in other databases. The keywords plus field
in SSCI (which is generated from the reference list of each citation) proved
useful to search as an alternative to an indexed controlled vocabulary. ERIC
was important for education topics. We observed there are potential issues with
applying date limits, and as such, in some databases, it is prudent to check
this by comparing the search results with an exclusion search of citations
outside of the date limits required.
Inability to locate some citations varied according to
database, topic, and individual citations in our analysis of the child to adult
services and the mental health setting transition topics. Searching the
following eight databases for the two topics would locate all the studies: BNI,
CINAHL, EMBASE, HMIC, MEDLINE, PsycINFO, SPP, and
SSCI. This same combination could potentially locate all the studies from
homecare; however, complete data is not available to check this with the
original searches. Over 20 databases were searched for each guideline, and our
findings suggest a potentially smaller number of databases would yield the same
results. This information is particularly useful in undertaking further
searches in areas related to these topics and for update searches of the
guidelines. Given that the most useful databases vary depending on topic, these
findings are tentative when applying to other topics.
It is important to be aware of specialist resources
relevant to a topic, and this is not fully considered here. For example, for
the child to adult services guideline, the NSPCC Inform child protection
database was also searched, and searching trials registries and systematic
review databases is often appropriate. However, the aim of this study was to
consider general topic-specific databases rather than specialized sources.
Context with
Other Research
To locate social care studies, flexibility of approaches
is needed in developing search strategies. This study shows this, and so have
others (Clapton, 2010; Forbes & Griffiths, 2002; McNally & Alborz,
2004). Our findings on important databases to search are consistent with five
of the six important databases from Golder et al. (2008), which related to
respite care for carers, though we did not investigate AgeLine.
Our study also confirms there are still difficulties with lack of abstracts.
Although it is accepted that multiple database
searching is important, our study informs practice on which databases might be
more useful to focus on when carrying out literature searches in social care
topics, with the caveat that every new topic faces the challenge of
articulating a search, finding suitable search terms, and knowing where to find
studies. Our results also highlight the variability in indexing studies across
databases. It further suggests variability of indexing within databases on
social care topics, within the broad remit of the guidelines included here. Analyzing the citations present within databases by their
study design was undertaken to explore the usefulness of these databases to
inform particular types of questions. The findings particularly highlight the
predominance of citations of studies about people’s views in certain databases;
however, the ability to identify these particular citations from the actual
searches is not tested.
Limitations of
This Research
There are a number of limitations to the findings
presented here. Two databases, HMIC and SPP, are particularly rich in
U.K.-relevant content, so their applicability and coverage to social care
topics from other countries are unclear. Given that the majority of studies on
people’s views and experiences were intentionally selected from the U.K. this
influences transferability of findings to other countries. It is also worth
considering that some studies in the guidelines contributed more than others,
and analyzing the influence of these goes beyond the
scope of this analysis.
The citations of research evidence used in the
analysis were from the search strategies developed for the guidelines and were
not compared with other search strategies. However, as part of the guideline
development process, the Guideline Committee and public stakeholders have the
opportunity to provide research evidence that may have been missed.
Understanding where citations are most likely to be
found informs decisions on utilising specific resources. This is particularly
useful for topics that are difficult to search for or where a paucity of
literature is anticipated. However, only assessing where items present does not
provide a complete picture. For example, although ERIC contained 9% of studies
from the child to adult transition topic, the sensitivity and practicality of
searching ERIC with our search strategy is not known. Using ERIC was important
to locate one study for the mental health settings transitions topic, but a
deliberately precise search was used. The utility of the interdisciplinary
database Scopus was not fully explored here; it was found, post-hoc, to contain
a majority of citations for all three guidelines, including 95% of citations
from mental health settings transitions topic, though the sensitivity of a
search needed to capture these is unknown. A final limitation is that this
study compares three guidelines undertaken at different points in time.
Differing date limits were used across review questions, with a focus on recent
literature where this was considered appropriate. CINAHL Plus was used in the
analysis of where citations were present in which databases, but only CINAHL
(which has less content) was searched for the child to adult services
guideline.
Conclusions
Developing guidelines and systematic reviews in social
care involves identifying social care research that is relevant, but not
limited, to integrated health and social care services. Broad questions to
inform integrated or multi-disciplinary service development are challenging to
articulate into concepts that can be translated into terms for searching and
require considerable thought and development. For social care practitioners who
want to use evidence in their practice and for policy makers in the same field,
guidelines informed by evidence reviews and systematic reviews are good ways of
grasping a coherent body of literature. Therefore, it is important that the
challenges of identifying such literature through systematic searching are
addressed. This study highlights challenges and reveals trends in identifying
social care research from database sources. There is variation in the ability
of the search terms to capture the studies from individual databases, even with
low-precision searches. However, this is mitigated by searching a combination
of databases and searching other resources and websites that are specific to
individual topics. We identified a combination of eight databases that were
important for finding literature for these topics. Multiple database searching
also mitigates issues related to the currency of content, topic and study
design focus, and consistency of indexing within individual databases.
Author Contributions and Acknowledgements
CS conceived of the study and undertook the main
analysis. CS and KL reflected on the findings and drafted the manuscript. An earlier version of this study was
presented by CS at the European Association of Health Information and Libraries
(EAHIL), Seville 8-10 June 2016. Thank you to Catherine Swann, Sarah Lester,
and Ginny Brunton for their feedback on the early work.
Funding
This study was undertaken as part of the work of the
NICE Collaborating Centre for Social Care, which received funding from the
National Institute for Health and Care Excellence. The views expressed in this
publication are those of the authors and not necessarily those of the
Institute.
Kristin
Liabo's time on this paper was supported by the NIHR
Collaboration for Leadership in Applied Health Research and Care South West
Peninsula. The views expressed are those of the authors and not necessarily
those of the NHS, the NIHR, or the Department of Health.
References
Bayliss, S., & Dretzke, J. (2006). Health
technology assessment in social care: a case study of randomized controlled
trial retrieval. International Journal of
Technology Assessment in Health Care,
22(1), 39-46. https://dx.doi.org/10.1017/S0266462306050823
Brettle, A., & Long, A. (2001). Comparison of bibliographic databases for
information on rehabilitation of people with severe mental illness. Bulletin
of the Medical Library Association, 89(4), 353-362. Retrieved from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC57964/
Brettle, A., Long, A., Grant, M., & Greenhalgh,
J. (1998). Searching for information on outcomes: Do you need to be
comprehensive? Quality in Health Care, 7(3), 163-167. http://dx.doi.org/10.1136/qshc.7.3.163
Brunton, G., Stansfield, C., Caird,
J., Thomas, J. (2017) Finding relevant studies. In: D. Gough, S. Oliver, &
J. Thomas (Eds.), An introduction to
systematic reviews. 2nd edition. London: Sage.
Clapton, J. (2010). Bibliographic databases for
social care searching (Knowledge
and Research: Report 34). London: Social Care Institute for Excellence.
Forbes, A., & Griffiths, P. (2002). Methodological
strategies for the identification and synthesis of ‘evidence’ to support
decision-making in relation to complex healthcare systems and practices. Nursing Inquiry, 9, 141–155. https://dx.doi.org/10.1046/j.1440-1800.2002.00146.x
Golder, S., Mason, A., & Spilsbury,
K. (2008). Systematic searches for the effectiveness of respite care. Journal
of the Medical Library Association, 96(2), 147-155. https://dx.doi.org/10.3163/1536-5050.96.2.147
Levay, P., Raynor, M., & Tuvey, D.
(2015). The contributions of MEDLINE, other bibliographic databases and various
search techniques to NICE public health guidance. Evidence Based Library and
Information Practice, 10(1), 50-68. http://dx.doi.org/10.18438/B82P55
McElhinney, H., Taylor, B., Sinclair, M., & Holman, MR.
(2016). Sensitivity and specificity of electronic databases:
The example of searching for evidence on child protection issues related to
pregnant women. Evidence Based Midwifery, 14(1), 29-34.
McFadden, P., Taylor, B., Campbell, A., & McQuilkin, J. (2012). Systematically identifying relevant
research: Case study on child protection social workers' resilience. Research
on Social Work Practice, 22(6), 626-636. https://dx.doi.org/10.1177/104973151245320
McGinn, T., Taylor, B., McColgan,
M., & McQuilkan, J. (2016). Social work
literature searching: Current issues with databases and online search engines. Research
on Social Work Practice, 23(6),
266-277. https://dx.doi.org/10.1177/1049731514549423
McNally, R., & Alborz, A. (2004). Developing
methods for systematic reviewing in health services delivery and organization:
an example from a review of access to health care for people with learning
disabilities. Part 1. Identifying the literature. Health Information and Libraries Journal, 21, 182–192. https://dx.doi.org/10.1111/j.1471-1842.2004.00512.x
National Institute for Health and Care Excellence
(NICE). (2014, December 2016 update) Developing
NICE guidelines: The manual (Process and methods [PMG20]). Retrieved from NICE website: https://www.nice.org.uk/process/pmg20
National Institute for Health and Care Excellence
(NICE). (2015, September). Home care: Delivering personal
care and practical support to older people living in their own homes (NICE guideline [NG21]). Retrieved from NICE
website: https://www.nice.org.uk/guidance/ng21
National Institute for Health and Care Excellence
(NICE). (2016, February). Transition from
children’s to adults' services for young people using health or social care services (NICE guideline
[NG43]). Retrieved from NICE website: https://www.nice.org.uk/guidance/ng43
National Institute for Health and Care Excellence
(NICE). (2016, August). Transition between inpatient mental health
settings and community or care home settings (NICE guideline [NG53]). Retrieved from NICE website: https://www.nice.org.uk/guidance/indevelopment/gid-scwave0711
Preston, L., Carroll, C., Gardois,
P., Paisley, S., & Kaltenthaler, E. (2015). Improving search efficiency for systematic reviews of
diagnostic test accuracy: An exploratory study to assess the viability of
limiting to MEDLINE, EMBASE and reference checking. Systematic Reviews,;4:82.
https://dx.doi.org/10.1186/s13643-015-0074-7
Stevenson, M., Taylor, B. J., & Knox, J. (2016).
Risk in dementia care: searching for the evidence. Health, Risk &
Society, 18(1-2), 4-20. http://dx.doi.org/10.1080/13698575.2015.1119256
Taylor, B., Dempster, M.,
& Donnelly, M. (2003). Hidden gems: Systematically searching electronic
databases for research publications for social work and social care. British
Journal of Social Work, 33(4), 423-439. https://dx.doi.org/10.1093/bjsw/33.4.423
Taylor, B., Wiley, E., Dempster,
M., & Donnelly, M. (2007). Systematically retrieving research: A case study
evaluating seven databases. Research on Social Work Practice, 17(6),
697-706. https://dx.doi.org/10.1177/1049731507304402
Thomas J, Brunton J, Graziosi S (2010) EPPI-Reviewer 4: software for research
synthesis. EPPI-Centre Software.
London: Social Science Research Unit, UCL Institute of Education