key: cord-0943570-aozgxzuu authors: Meyer, Stephanie; Cignacco, Eva; Monteverde, Settimio; Trachsel, Manuel; Raio, Luigi; Oelhafen, Stephan title: ‘We felt like part of a production system’: A qualitative study on women’s experiences of mistreatment during childbirth in Switzerland date: 2022-02-18 journal: PLoS One DOI: 10.1371/journal.pone.0264119 sha: 11d2c94b8e006012edf44817d58c893c67e5ef60 doc_id: 943570 cord_uid: aozgxzuu INTRODUCTION: Mistreatment during childbirth is an issue of global magnitude that not only violates fundamental human rights but also seriously impacts women’s well-being. The purpose of this study was to gain a better understanding of the phenomenon by exploring the individual experiences of women who reported mistreatment during childbirth in Switzerland. MATERIALS AND METHODS: This project used a mixed methods approach to investigate women’s experiences of mistreatment during childbirth in general and informal coercion specifically: The present qualitative study expands on the findings from a nationwide online survey on childbirth experience. It combines inductive with theoretical thematic analysis to study the 7,753 comments women wrote in the survey and the subsequent interviews with 11 women who reported being mistreated during childbirth. RESULTS: The women described a wide range of experiences of mistreatment during childbirth in both the survey comments and the interviews. Out of all survey participants who wrote at least one comment (n = 3,547), 28% described one or more experiences of mistreatment. Six of the seven types of mistreatment listed in Bohren and colleagues’ typology of mistreatment during childbirth were found, the most frequent of which were ineffective communication and lack of informed consent. Five additional themes were identified in the interviews: Informal coercion, risk factors for mistreatment, consequences of mistreatment, examples of good care, and what’s needed to improve maternity care. CONCLUSION: The findings from this study show that experiences of mistreatment are a reality in Swiss maternity care and give insight into women’s individual experiences as well as how these affect them during and after childbirth. This study emphasises the need to respect women’s autonomy in order to prevent mistreatment and empower women to actively participate in decisions. Both individual and systemic efforts are required to prevent mistreatment and guarantee respectful, dignified, and high-quality maternity care for all. In recent years, the topic of mistreatment during childbirth has been gaining more and more attention: Women have started to speak out and share their negative experiences of maternity care, which in turn has sparked debate among the public, healthcare systems, and the media. Furthermore, following the combined efforts of activists, governmental and non-governmental organisations, and researchers, several Latin American countries have acknowledged obstetric violence as a form of gender-based violence and have passed laws to combat it, the first of which was Venezuela in 2007 [1] . However, mistreatment during childbirth continues to be a widespread problem around the world, including in high-income countries: Recent studies in Switzerland, Italy, Spain, the Netherlands, and the US for instance have shown that a significant proportion of women report that they are mistreated by healthcare professionals (HCPs) during childbirth [2] [3] [4] [5] [6] . Women have the right to safe, respectful, and dignified obstetric care and any form of mistreatment violates fundamental human rights [7] [8] [9] [10] [11] . The World Health Organization (WHO) acknowledged the problem in 2015, when it issued a statement for the prevention and elimination of disrespect and abuse during facility-based childbirth in which it called for greater action, dialogue, research, and advocacy on the matter [12] . Apart from violating fundamental human rights, mistreatment during childbirth can threaten women's mental health: Negative or traumatic birth experiences are associated with post-traumatic stress disorder (PTSD) [e.g., [13] [14] [15] [16] [17] [18] [19] . A meta-analysis on risk factors of childbirth-related PTSD drew attention to the importance of women's experiences during birth, reporting an association between PTSD symptoms and low perceived quality of interactions with medical staff [20] . Reed, Sharman, and Inglis found that traumatic birth experiences were most often connected to care provider actions and interactions: Women reported that care providers prioritised their own agendas over the women's needs, disregarded women's own embodied knowledge, used lies and threats to coerce them into complying, and violated them [21] . These findings indicate that rather than care providers' actions themselves, it is the way in which care providers carry these out that is traumatic. Childbirth-related PTSD is associated with lower rates of breastfeeding and low birth weight [22] and can have serious long-term effects for women's physical, emotional, and social well-being and their relationships with their partners and their children [23] . One difficulty in gaining a better understanding of and thereby preventing the phenomenon may be the variety of terminology used to describe it: Mistreatment, obstetric violence, disrespect and abuse, dehumanised care, or coercion are often used more or less interchangeably depending on country, context, stakeholders, and research methods, although each term emphasises different aspects of the issue [24] . Bohren, Vogel, Hunter, Lutsiv, Makh, Paulo Souza et al. recommend the term mistreatment of women during childbirth 'as a broader, more inclusive term that better captures the full range of experiences women and healthcare providers have described in the literature' [25] . Their comprehensive, evidence-based typology of mistreatment is the result of a mixed methods systematic review of 65 studies from 34 countries. It encompasses the seven main themes physical abuse, sexual abuse, verbal abuse, stigma and discrimination, failure to meet professional standards of care, poor rapport between women and providers as well as health system conditions and constraints. The typology thereby includes both intentional and unintentional behaviours and acknowledges mistreatment as owing to both individual and structural issues. For these reasons, the present study adopted mistreatment as an umbrella term for violent, disrespectful, abusive, coercive, or otherwise poor maternity care. So far, most studies investigating mistreatment during childbirth have focused on low-and middle-income countries, where the prevalence ranges between 20-77% [e.g., 26-30]. However, recent studies have shown comparable results in high-income countries. In Italy for instance, one in five participants in a nation-wide community-based survey considered themselves victims of obstetric violence [3] . As a result, many decided not to return to the same facility should they become pregnant again or even not to have any more children. Explicit requests for consent before medical procedures were negatively associated with reports of obstetric violence, a finding that highlights the importance of patient autonomy. In a Spanish study, more than a third of the participants indicated having suffered obstetric violence and nearly half reported that they underwent procedures for which they did not provide informed consent [4] . Women who reported obstetric violence were significantly less satisfied with the care they received. Several studies investigating mistreatment during childbirth in highincome countries used the typology by Bohren et al. A secondary qualitative analysis of a phenomenological study on birth trauma with women from New Zealand, the US, Australia, and the UK identified six types of mistreatment, the most frequent of which was failure to meet professional standards of care, specifically being neglected and abandoned by HCPs [31] . A cross-sectional online survey found that one in six US women experienced at least one type of mistreatment during childbirth, of which being shouted at or scolded by a HCP was the most commonly reported, followed by HCPs ignoring women, refusing their requests for help, or failing to respond to such requests in a reasonable amount of time [6] . In the Netherlands, van der Pijl, Hollander, van der Linden, Verweij, Holten, Kingma et al. conducted a qualitative social media content analysis of negative or traumatic childbirth experiences shared by women in the #genoeggezwegen campaign (known as #breakthesilence or #rosesrevolution in English) [5] . The most common types of mistreatment were ineffective communication, loss of autonomy, and lack of informed consent and confidentiality. In addition to mistreatment, their inductive analysis revealed a further five themes, such as not being taken seriously and not being listened to and short-and long-term consequences, as well as the overarching theme left powerless, which referred to a feeling of powerlessness both during birth and afterwards. The present project adopted a mixed methods approach to explore the experiences of women who gave birth in Switzerland. The first, quantitative part was an online survey on childbirth experience among over 6,000 mothers in Switzerland that focused on informal coercion [2] . According to the Swiss Academy of Medical Sciences, medical measures are considered coercive if they are carried out against a patient's will or despite their opposition or resistance, which highlights the importance of patient autonomy in healthcare [32] . Formal coercion is a legally justified restriction of a patient's autonomy when they lack power of judgment; involuntary committal or compulsory drug treatment for instance are customary measures in psychiatric settings in Switzerland. Seeing as women in labour generally possess power of judgment, less evident or so-called informal methods of coercion may be more likely in maternity care. Informal coercion ranges from relatively covert or subtle forms such as denying women the time or information necessary to reach an autonomous decision to more blatantly coaxing them into complying by means of pressure, intimidation or manipulation or even performing procedures without their consent or despite their resistance [2, 32] . More than a quarter (26.7%) of the women who participated in the survey reported that they had experienced informal coercion during birth [2] . In line with previous research outlined above, experiencing informal coercion was detrimental to women's birth experience and their mental health: Women who were subjected to informal coercion were less satisfied with their childbirth and were more at risk of post-partum mental health issues. Moreover, migrant women reported higher rates of informal coercion than Swiss women and were more likely to experience post-partum mental health issues. This article presents the findings from the second, qualitative part of the project, which aimed to expand on the results from the first part and thereby contribute to a better understanding of informal coercion specifically and mistreatment more generally by exploring women's individual experiences of mistreatment, the aspects of the experience that most affected them during and after birth as well as how they attempted to cope with it. To this end, we first analysed the nearly 8,000 comments women left in the online survey and subsequently conducted and analysed interviews with 11 women who reported a negative birth experience. The present research project used a mixed methods approach to assess the prevalence and women's individual experiences of informal coercion specifically and mistreatment more generally during childbirth in Switzerland. The first, quantitative part was a nationwide, cross-sectional online survey on women's childbirth experience [2] . The survey encompassed questions about their pregnancy and birth in general and focused on informal coercion and the informed consent process regarding any obstetric interventions they underwent specifically. At the end of every section, participants were given the opportunity to provide additional information concerning the previous questions in open-ended text boxes. Due to the vast number as well as the rich content of these comments, it was decided that they should be coded and analysed and included in the second, qualitative part of the project. The key component of this second part was an interview study with women who reported a negative experience during childbirth, which was defined as the period between the women's arrival at the birth facility and the first few hours after birth. The aim of the interview study was to expand on the findings from the survey in order to better understand informal coercion as well as how the women's experiences affected them during and after birth. The four principal questions addressed women's overall birth experience, their interactions with HCPs, decision-making during childbirth, and their cognitive processing of the birth and were designed to encourage women to describe their birth experience in as much detail as possible. Although the main focus of the interviews was informal coercion, the interview guide also incorporated optional follow-up questions inspired by Bohren et al.'s concept and typology of mistreatment during childbirth as well as research on treatment pressure in psychiatric settings, which were discovered and considered potentially relevant while reviewing related literature [33, 34] . One of the authors (StM) constructed the semi-structured interview guide according to the guidelines by Helfferich [35] , adapted the first draft of the interview guide to feedback from the co-authors, and subsequently translated it from German to English and French (see Tables A-C in S1 Appendix for the interview guide in all three language versions). At the end of the interview, the participants were asked a range of demographic questions. For the qualitative study, we adhered to the COREQ guidelines (see S1 Table for the completed checklist). Out of the 6,054 women who completed the survey and met the eligibility criteria, more than half (n = 3,547) wrote at least one comment in answer to a question potentially relevant to mistreatment, that is, which concerned a specific medical intervention they underwent or informal coercion and the informed consent process in general; the total number of comments was 7,753. This constituted the sub-sample and dataset for the qualitative analysis of the survey comments. In order to recruit participants for the interview study, e-mails were sent out in German, French, Italian, or English to all the survey participants who had provided their e-mail address for updates on the study (n = 233), inquiring whether they were interested in participating in an interview study on childbirth experience. This e-mail contained a brief and vague description of the goal of the study-i.e., to discover more about women's individual birth experiences-and a few screening questions, the most important of which was a request to describe their childbirth and any negative experiences they may have had in a few words. Furthermore, we posted a call for participation on our website and sent the same screening questions to the women who answered it. Out of the 50 women who were willing to participate, 11 were chosen for an interview. The inclusion criteria were that they described a negative interaction with HCPs during birth in their answers to the screening questions, that they had given birth in a facility in Switzerland, that their child was no more than two years old, and that they spoke (Swiss) German, French, or English. One researcher (StM) then contacted each woman by e-mail to set up the interview. The women's age ranged between 29 and 40 years (M = 34.8), their children's between three and 20 months (M = 12.3). Seven women were Swiss, two were from neighbouring states (Germany, France), and two were from non-neighbouring states (Poland, Brazil). All women gave birth at a hospital; two by vaginal birth, four by caesarean section, and five by vacuum birth. Regarding their main caregivers during birth, five were primarily treated by doctors and midwives, five by midwives, and one by doctors. Eight women were primiparous and three had given birth before. Most women in the sample were highly educated: Eight women had a university degree, one had completed higher technical and vocational training, and two had completed basic vocational training. All women apart from one had also participated in the online survey. The survey data was collected between August 2019 and January 2020 using the Qualtrics online survey software [36] and subsequently processed in Excel. The interviews took place between May and November 2020. Due to the COVID-19 pandemic, it was not possible to conduct the interviews face-to-face. Instead, they were carried using the video conferencing service BlueJeans [37] . The first author (StM) conducted all the interviews; eight in Swiss German, two in English, and one in French. She is a social psychologist (MSc) and is a native English and German speaker and fluent in French. At the beginning of each interview, the researcher introduced herself and ran through the purpose of the study, the consent form, the interview procedure, and any questions they may have had with the participants. Most interviews took roughly half an hour (range: 25-77 minutes). Following each interview, the interviewer discussed the main contents and possible minor adjustments to the interview guide with another author (SO). The interview audios were recorded and subsequently transcribed by one researcher (StM) using the software f4transkript [38] . Information that could allow the direct identification of the interviewees such as their own name or the names of partners, children, HCPs, hospitals, or places was removed from the transcripts. Data saturation was discussed after the 10 th interview and considered reached after the 11 th . The interview transcripts were then imported into the ATLAS.ti 8 software for the thematic analysis [39] . One of the authors (StM) translated German and French verbatim quotes into English for the purpose of this publication. Because this was a national study, all seven regional ethics committees in Switzerland confirmed that by the Swiss Human Research Act, the current study did not require ethical approval (Req-2019-00116). The survey participants were asked to confirm that they had understood the study information and to provide their consent on the first page. The interview participants were asked to read the written consent form shown through screen sharing and to provide initial verbal consent before the start of the interview. Following the interview, they received the form by e-mail, which they were asked to sign and return. They also received a document with information about the study and contact details of support services. Participants were ensured that their privacy would be protected and their data would be treated confidentially. Both datasets-i.e., the survey comments and the interview transcripts-were analysed using thematic analysis [40] . In a first step, the survey comments were coded using an inductive approach. One of the authors (StM) coded all 7,753 survey comments and discussed ambiguous comments, code definitions, and examples with another author (SO). As a means of validation and measure of inter-rater agreement, a midwife research intern independently coded one third of the comments. When she had coded the comments in 1,669 survey responses, the two researchers compared and discussed their codes and definitions. The inter-rater reliability was calculated based on a validation sample of 533 survey responses. The overall agreement differentiating between women who experienced any form of mistreatment and women who did not was good (Krippendorf's alpha = .74, 95% bootstrap confidence interval [.66;.82]), although the reliability of the individual codes varied considerably (S2 Table) [41] . The code list generated based on the survey comments was not consulted again until the final stage of the qualitative analysis of both datasets to ensure independent, inductive coding and the creation of new codes throughout the interview analysis process. In the second part of the qualitative analysis, a group of three to four researchers (StM, SO, and one to two midwives per interview) first coded each interview transcript individually using an inductive approach. Following the individual coding, the group of researchers met to examine, compare, and discuss the interviews and their individual codes and adapted the code list accordingly. The midwives received only the two to three interviews they were asked to code and had no insight into the other interviews in order to minimise bias and allow a fresh perspective. Following the final interview analysis session, the two code lists generated based on the survey comments and the interviews were compared to each other. Although the original aim of the study focused on informal coercion, the women described a wide range of negative experiences in both the survey comments and the interviews that encompassed not only coercion, but also disrespect, abuse, neglect, and physical and verbal violence. Seeing as many of the codes matched Bohren et al.'s typology, this framework was used to structure the data and to assign codes that matched it to the according themes in a theoretical approach. An overview of all themes and codes can be found in S3 Table. Next, one of the authors (StM) analysed the remaining interview codes and identified themes using an inductive approach. To do so, the extracts within each code were collated and compared to ensure coding consistency. Once the codes were thus refined and defined, they were sorted into themes with the help of mind-maps and the relationships among and between the codes and themes were examined. The resulting themes were then discussed with another author (SO) and reviewed and refined by once again collating all the extracts for each theme and rereading the interviews to check for accuracy as well as additional data. In a final step, the themes and sub-themes were named and defined and the most vivid and compelling quotes were chosen to illustrate them. We found instances of all types of mistreatment according to Bohren et al.'s typology in the survey comments and the interviews except for stigma and discrimination, which none of the survey comments in question referenced explicitly enough to justify coding it and was not described in any of the interviews. Physical and/or sexual abuse was only coded in the survey comments since it did not appear in any of the interviews. Seeing as none of the women reported breaches of confidentiality, the according theme was shortened to 'lack of informed consent' for the purpose of this paper. In addition to the different types of mistreatment, the inductive analysis of the interviews allowed the identification of a further five themes and four sub-themes, including informal coercion and factors that often co-occurred with mistreatment. The results are divided into two sections: First, the types of mistreatment we found and their frequencies in the survey comments will be presented and subsequently the five themes that we identified in the interviews will be described and illustrated with quotes. Table 1 shows the six out of the seven types of mistreatment and the sub-types according to the typology by Bohren et al. that were found in both datasets as well as their frequencies in the survey comments. Although this was a qualitative study and we used a thematic analysis approach to analyse our data, the large number of survey comments allowed an additional quantitative description of the types of mistreatment we identified. Most comments referred to various types of mistreatment and therefore received multiple codes, which explains why the percentages in Table 1 add up to over 100. Out of the 3,547 survey participants who wrote at least one comment in answer to a question relevant to mistreatment, 992 (28.0%) described at least one type of mistreatment. We identified five additional themes in the interviews: Informal coercion, risk factors for mistreatment, consequences of mistreatment, examples of good care, and what's needed to improve maternity care. Consequences of mistreatment were divided into the four sub-themes immediate reactions, birth experience, after-effects, and coping. These themes and sub-themes are described and illustrated with quotes below. Informal coercion. Informal coercion was mainly characterised by a lack of respect for women and their autonomy, which undermined the informed consent process. The women were often either denied the time and/or information necessary to make an informed choice or not included in decision-making at all. Many of the women described how HCPs pressured them to comply, for instance by insisting on an intervention. One woman for example was given morphine during labour despite her repeated opposition. Several women reported that they were intimidated or threatened with negative consequences for themselves or their baby should they refuse to agree to an intervention, such as caesarean section. Furthermore, many recounted that they were not taken seriously as individuals, but rather that their wishes, needs, sensations, and judgment were dismissed and interventions were carried out despite their concerns. One woman for instance reported that the HCPs ignored her when she repeatedly told them the anaesthesia was not effective and proceeded with the caesarean section regardless. Risk factors for mistreatment. A number of factors seemed to facilitate mistreatment. Several women talked about how they were not able to think, not able to cope, or how they felt insecure or helpless during birth, which left them unable to defend themselves. This in turn often led to procedures being carried out without the women's consent. Some women said they were influenced by their partner's opinion or the inherently unequal caregiver-patient relationship and the resulting questions of trust and responsibility. And then it's like, if a doctor says to me, 'I think we need to,' then yeah. Again, it's like, how much responsibility do you hand off to them, you know? (Interview 9) Furthermore, feeling ill-prepared for birth due to inadequate antenatal classes and prolonged labour often coincided with mistreatment. Consequences of mistreatment. The women reported a wide range of consequences following their experience of mistreatment, which were further divided into four sub-themes: Immediate reactions, birth experience, after-effects, and coping. Immediate reactions. Women's immediate reaction to mistreatment depended on their assertiveness and their understanding of the patient-caregiver relationship. More assertive and confident women stood up for themselves by opposing HCPs when they felt that their autonomy was not being respected. Less assertive women or women who seemed to adhere to a more traditional understanding of the roles of patients and caregivers on the other hand often submitted themselves to the HCPs. That is, they did not question the HCPs' opinions, gave in to pressure, or did not dare to resist. This often coincided with self-doubt and self-deprecation. I mean, we had no idea why it was going so fast and we also didn't speak up, I think maybe we could also have said it again. But when I said it was going too fast, when I told the midwife, 'Hey, I asked you for a few minutes,' and she said, 'No, we need to start,' then I am not the one confronting too much. (Interview 5) Birth experience. Looking back on their birth, most women who experienced mistreatment expressed negative feelings regarding the birth as a whole or specific parts of it. Asked about how mistreatment made them feel during birth, some women described a loss of control or autonomy that left them in a state of distress. One woman recounted how she felt robbed of a positive birth experience due to the various types of mistreatment she suffered at the hands of her main caregiver. After-effects. Most women who reported being mistreated struggled with coming to terms with their experience and felt sad or frustrated following their birth. These feelings often persisted for a long time after birth or even had lasting effects. While some were left with open questions and uncertainties they needed to clarify with HCPs, others avoided thinking or talking about their experience altogether. Many were troubled by 'what if' thoughts, that is, they continued to go over scenarios of how their birth could have unfolded differently. Many also struggled with regrets or blamed themselves for what they experienced. Some women described how their experience of mistreatment affected or changed their feelings, attitudes or intentions regarding a potential future pregnancy and birth. Coping. The women often pointed out how it took time for them come to terms with or let go of what happened to them. In terms of processing their experience, most women found talking about their birth helpful and important, be it with the HCPs who were involved, with other (mental) health providers or with their family and friends. Extenuating their mistreatment seemed to be another common form of coping, seeing as all interviewees diminished their experience or exonerated the individual HCPs or the facilities who mistreated them. Instead, they blamed themselves or responded with understanding and searched for justifications and external or situational explanations. Some women also compared themselves to others whose experience they judged as worse than their own or focused on positive aspects of their birth or on the fact that their baby was born healthy. Examples of good care. Some women also recounted positive experiences and interactions with HCPs during childbirth, such as HCPs treating them with empathy, communicating openly, respecting boundaries and patient autonomy as well as enabling or even encouraging them to make their own informed decision. Examples of good care also included HCPs giving women time to come to terms with a decision even after it had essentially been made. HCPs who treated them with respect and took the time to explain procedures left a good impression on women. What's needed to improve maternity care. The last theme encompasses women's own wishes and suggestions for improving maternity care; both what they would have wanted during their own childbirth as well as general improvement suggestions. Almost all women stressed the need for HCPs to treat them with respect and empathy, to provide more support and help, and to take more time for them. Several women indicated that they did not understand the interventions they underwent or the reasons for them and that they would have required more orientation. Some also recounted that they felt rushed and wished for more time to consider and process information. The interviews made it clear that women's relationship with the HCPs was a key aspect of their birth experience, seeing as they emphasised the need for a main caregiver they knew they could trust and supported them. The present study aimed to expand on the results from a nationwide survey on childbirth experience and thereby contribute to a better understanding of mistreatment during childbirth. To this end, we analysed the comments collected in the survey and the interviews that were subsequently conducted with women who reported a negative experience during childbirth. The survey found that one in four women experience informal coercion during childbirth in Switzerland and that it is therefore a common phenomenon [2] . The present, qualitative study elucidated women's individual experiences of informal coercion and mistreatment more generally and how these affect them during and after childbirth. Our findings indicate that women are subjected to various types of mistreatment during childbirth in Switzerland, which has a negative impact on their birth experience and their well-being. In addition to mistreatment, we identified informal coercion as a specific type of mistreatment, risk factors for and consequences of mistreatment, examples of good care, and women's perspectives on what is needed to improve maternity care in the interviews. The quantitative analysis of the survey comments showed that the number of women who described mistreatment in a comment-i.e., 28.0% of all women who wrote a commentmatched the 26.7% of women who reported informal coercion in the previously published quantitative part of the project [2] . Although the initial research question focused on informal coercion, women described various types of mistreatment according to Bohren et al.'s typology in both the survey comments and the interviews. The two most common types of mistreatment found in the survey comments were ineffective communication, which was coded in 17.4% of the comments, and lack of informed consent, which 15.1% of the comments referred to. These were also two of the three most reported types of mistreatment in van der Pijl et al.'s study in the Netherlands [5] . It seems many women do not receive sufficient information or orientation during childbirth and are not respected as individuals, which leaves them feeling insecure or passive and undermines the informed consent process. An interesting finding was the difference in language used to describe experiences of mistreatment between the survey comments and the interviews. While the survey participants used more explicit and more negative words to describe their experience, the interviewees were more cautious and chose less explicit words. It may be easier to report such an intimate and distressing experience anonymously in an online survey than to describe it in an interview, which underscores the importance of combining the two approaches. A study with postpartum women showed that they disclosed significantly more sensitive information such as intimate partner violence when they were guaranteed anonymity compared to confidentiality of their responses [42] . The fact that many of the survey participants and all interviewees described several types of mistreatment suggests that mistreatment is rarely a single, isolated event, but rather that certain types of mistreatment frequently co-occur or may even give rise to others. For example, failure to respect a woman's autonomy and to communicate effectively undermines the informed consent process, which in turn can result in procedures being carried out against her will. The overlap and relationship between different types of mistreatment is an avenue worth exploring in future research. In addition to mistreatment, a further five themes emerged in the interviews: informal coercion, potential risk factors for mistreatment, consequences of mistreatment, examples of good care, and what's needed to improve maternity care. Consequences of mistreatment were divided into the four sub-themes immediate reactions, birth experience, after-effects, and coping. These themes can precede, co-occur with, or follow mistreatment and thus provide a fuller picture and a broader understanding of the phenomenon. Informal coercion was identified as a central theme in the interviews and was characterised by a lack of respect for women's autonomy. This finding highlights the importance of enabling and encouraging women to actively participate in decisions regarding their care. This can be achieved through shared decision-making (SDM), which promotes open, honest, and respectful communication and involves patients and HCPs collaborating to make health care decisions that are based upon the best available evidence and patients' preferences, values, and needs [43] . SDM is therefore argued to be 'the pinnacle of patient-centred care' [44] . In order for HCPs to put SDM into practice however, they must subscribe to the guiding ethical principle that individual self-determination is a desirable goal and support patients to achieve this goal [45] . Although SDM is beneficial to patients, HCPs, and healthcare facilities and systems alike, a number of barriers still prevent it from being the norm in maternity care, which include 'existing cultural norms of 'the doctor knows best' and 'patient acquiescence' [46] . Begley, Daly, Panda, and Begley argue that other factors such as concerns over litigation, private insurance that pays more to the obstetrician if more interventions are carried out, constraining guidelines and management policies, HCPs' level of confidence and skills, and HCPs making decisions based on their personal convenience are most likely additional barriers in the way of SDM [46] . Therefore, structural and systemic change is needed to foster acceptance of a culture of SDM and thereby implement it as the norm in maternity care. A number of factors were discerned that often occurred in the context of mistreatment and therefore may contribute to, facilitate or exacerbate it. These risk factors pertained to the woman (e.g., 'not being able to think'), to interactions with the HCPs or her partner (e.g., the power imbalance between HCPs and patients), or to the situation (e.g., prolonged labour). While this finding is consistent with studies that have demonstrated effects of socio-demographic factors such as nationality or race on mistreatment, the present study does not allow any causal interpretations and future research should investigate the link between these potential risk factors and mistreatment [2, 6] . Many of the women reported negative consequences of mistreatment that affected them both in the short and/or long term. This was the case for both comparably mild and more severe experiences of mistreatment. This finding corresponds with van der Pijl et al.'s findings, who identified a theme by the same name in their inductive analysis, which most often referred to emotional consequences that tormented some women even years later [5] . In the present study, more assertive women reacted to mistreatment with resistance and defended their autonomy during childbirth, while less assertive women or women who seemed to have a more traditional understanding of the patient-caregiver relationship submitted themselves to the HCPs. This finding emphasises the need to respect women's autonomy and to pay particular attention when treating less assertive or primiparous women. Experiencing mistreatment resulted in a negative appraisal of the whole birth experience or parts of it. This ties in with previous studies that found negative effects of mistreatment on women's satisfaction with childbirth [2, 4] . For some women, mistreatment resulted in a change in attitudes or intentions regarding (future) childbirth. In line with the previously referenced Italian study, certain women decided not to return to the same facility if they became pregnant again or even not to have any more children [3] . Many dealt with after-effects such as feelings of sadness and frustration, guilt and regret, self-blame, flashbacks, obsessing over 'what if' scenarios and how their experience could have been different, or avoiding memories of their birth. Byrne, Egan, Mac Neela and Sarma, who explored the subjective experience of birth trauma, found that coping through detachment, which encompasses avoidance and dissociation, was a common response to a traumatic birth experience [47] . While the present study did not assess mental health indicators, the previously described after-effects are established symptoms of PTSD. Furthermore, some women reported they had been diagnosed with postpartum depression and/or that they were currently receiving psychological treatment to come to terms with their birth. These results tie in with previous research that has confirmed a link between a negative or traumatic birth experience and post-partum mental health issues [13] [14] [15] [16] [17] [18] [19] [20] [21] . The women described different ways of coping with their experience of mistreatment, such as discussing it with other people or extenuating it. Asked about what they found most helpful in processing their experience, most women stressed the importance of talking about it, be it with the HCPs involved, with other (mental) health providers such as nurses or therapists, or with family and friends. Women who had avoided thinking or talking about their mistreatment up until the interview exhibited clear signs of not having fully processed their experience and not being at peace with it. Although there is limited evidence for the effectiveness of debriefing interventions in preventing postpartum mental health issues, several reviews nonetheless support our finding that women generally find talking about their experience and being listened to beneficial [48] [49] [50] . One of the most frequently used codes was extenuation, seeing as all women diminished or excused their mistreatment. This ties in with Ayers, who found that women who self-reported a traumatic birth, regardless of whether they had PTSD symptoms or not, engaged in various thought processes to help cognitively process their experience such as retrospectively taking a fatalistic view of birth or focusing on the inevitability of labour [51] . Our findings concerning the consequences of and women's coping with mistreatment during childbirth give evidence to the serious and long-lasting impact it can have on women's well-being and to the benefits of sharing their experience. Furthermore, they indicate the need for sensitive after-care for all mothers to support them in processing their birth and ideally detect and treat postpartum mental health issues. Although the present project centred around mistreatment, some women also described examples of good care and positive experiences and interactions with HCPs during birth. These accounts correspond with aspects of Shakibazadeh, Namadian, Bohren, Vogel, Rashidian, Nogueira Pileggi et al.'s typology of respectful maternity care (RMC), which is the result of a qualitative evidence synthesis of 67 studies from 32 countries and encompasses twelve domains, such as prospective provision of information and seeking informed consent, engaging with effective communication, and respecting women's choices [52] . RMC refers to 'care organized for and provided to all women in a manner that maintains their dignity, privacy and confidentiality, ensures freedom from harm and mistreatment, and enables informed choice and continuous support during labour and childbirth' and is recommended by the WHO [53] . So far, research on the effectiveness of such policies is sparse. A systematic review of five studies undertaken in four African countries found moderate evidence that multi-component RMC policies reduced women's experiences of disrespect and abuse overall [54] . However, there was less evidence for an effect on individual types of mistreatment. Moreover, the most successful elements as well as the sustainability of such policies remain unclear. The fact that some women in our study experienced elements of both mistreatment and respectful care confirms that the two do not necessarily exclude each other and that RMC is more complex than the mere absence of mistreatment [24, 55] . This in turn suggests that preventing mistreatment and implementing RMC may require simultaneous yet different types of interventions [24, 55] . Therefore, researchers and HCPs alike must strive to prevent mistreatment as well as implement RMC in order to ensure respectful and dignified care for all-before, during and after childbirth. The last theme encompasses women's perspectives on what is needed to improve maternity care. Making women's voices heard was the aim of the What Women Want global advocacy campaign, which seeks to improve quality maternal and reproductive healthcare and strengthen health systems. The campaigners asked 1.2 million women in 114 countries about their priorities regarding maternal and reproductive health services and their top demand was respectful and dignified care [56] . This corresponds with our finding that most women stressed the need for more sensitive care and for HCPs to treat them as individuals, which was particularly well illustrated in a quote by one interviewee who emphasised the importance of HCPs acknowledging birth as an exceptional situation and experience and taking time for women despite time constraints. Therefore, in order to truly attain high quality women-centred maternity care, it is essential to listen to women individually and collectively and to incorporate their insights into healthcare policies and guidelines. Taken together, our findings highlight how multifaceted and multi-layered mistreatment during childbirth is. While the interpersonal level of the caregiver-patient relationship may be the most obvious and interventions directed at HCPs are essential, the systemic and structural level must not be ignored. However, while systemic factors can provide contextual explanations for mistreatment, they can never serve as justifications. One of the primary strengths of the study is its design, which integrated two different datasets: The comments written in a largescale, nationwide online survey on childbirth experience and the interviews conducted with women who reported being mistreated during childbirth. This allowed both quantitative conclusions regarding the frequency of different types of mistreatment as well as qualitative conclusions concerning women's individual experiences of mistreatment and how these affect them during and after childbirth. Furthermore, the qualitative analysis combined inductive with theoretical thematic analysis. On the one hand, this approach confirmed the applicability of Bohren et al.'s typology of mistreatment in a Swiss context. On the other, it allowed a further five themes to be identified that contribute to a fuller picture and a broader understanding of the issue. The limitations of this study include the self-selection of participants, both for the survey and for the interviews. In the survey, women could choose to provide further information about their birth in open-ended text boxes at the end of every section, however, this was not mandatory. As for the interviews, the previously referenced tendency to disclose more sensitive information in an anonymous setting may also have played into the relatively low response rate of 21% to the recruitment e-mail, especially considering that the women it was sent to had all already filled in the questionnaire [42] . Women who chose to participate in the interview study are likely to differ from women who did not. For instance, women who had a particularly traumatic experience and are coping through detachment may shy away from sharing their story in an interview. This limitation also raises questions concerning the optimal and most ethical recruitment of participants for studies on mistreatment during childbirth and/or traumatic birth. Another important limitation of the study is the lack of diversity in the interview sample, considering that all interviewees were white heterosexual cisgender women who were Swiss nationals or residents and mostly highly educated. Future research should include marginalised populations such as the LGBTIQ+ community and refugees and asylum-seekers. Seeing as marginalised groups are more vulnerable to stigma and discrimination in general, they are also likely to be more at risk of mistreatment in maternity care [6, 57] . The previously referenced US study for instance found that Black, indigenous, and women of colour experienced significantly higher rates of mistreatment [6] . Furthermore, the sample only included women living in the German speaking part of Switzerland, since no one from the French speaking part met the eligibility criteria and no one from the Italian speaking part replied to the recruitment e-mail. Both the self-selection of participants and the lack of diversity in the interview sample mean our findings cannot be generalised. Given that the analysis of the survey comments was not a part of the initial study design and therefore not planned, we did not have the resources necessary to allow all survey comments to be coded independently by two researchers. However, seeing as the purpose was only to check whether the first coder's distinction between mistreatment and no mistreatment was reliable, and the inter-rater agreement was good, this limitation does not seem to have impacted the methodological quality of the study. Lastly, it seems important to point out that the interviews took place during the COVID-19 pandemic. The effects of this context in itself and the fact that the interviews took place by video call as a consequence are unclear. Although many aspects of our life have shifted to the digital sphere and we have become accustomed to life online over the course of the pandemic, some important aspects that are inherent to face-toface interactions such as nonverbal signals and body language cannot be conveyed in a video call. Furthermore, meeting in person provides the opportunity for building trust through small talk prior to an interview. It is therefore possible that face-to-face interviews would have encouraged women to share more intimate details. Although it was recommended that participants seek a quiet place where they would not be disturbed for the interview, their baby was present in some interviews and, in one case, a participant's husband, which may also have influenced their responses. Despite these limitations, the study shows that mistreatment is a reality in Swiss maternity care and affects women both during and after birth and introduces avenues worthy of further investigation. Research has shown that mistreatment during childbirth is an issue of global magnitude, which was acknowledged by both the WHO and the United Nations (UN). This study sheds light on women's individual experiences of mistreatment and how these affect them during and after childbirth. It pinpoints informal coercion as a specific type of mistreatment, identifies risk factors for and consequences of mistreatment as well as examples of good care, and amplifies women's views on what is needed to improve maternity care. The findings from this study thus contribute to a better understanding of mistreatment during childbirth and highlight the need for systemic efforts to increase HCPs' awareness of the issue and to enable and empower women to actively participate in decision-making in order to achieve respectful, dignified, and high-quality maternity care for all. 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WHO recommendations: Intrapartum care for a positive childbirth experience Effectiveness of respectful care policies for women using routine intrapartum services: a systematic review Transforming intrapartum care: Respectful maternity care What Women Want: Demands for Quality Reproductive and Maternal Healthcare from Women and Girls Reproducing while Black: The crisis of Black maternal health, obstetric racism and assisted reproductive technology First and foremost, we are incredibly grateful to the women who took the time to share their birth experience with us. Furthermore, we thank Lea Bucher, Anja Hurni, Raquel Mühlheim, Cecilia Gebhart, and Rahel Messmer for their valuable contribution to the analysis of the interviews.