key: cord-0773329-87ske1tx authors: White, Jennifer; Byles, Julie; Walley, Tom title: The qualitative experience of telehealth access and clinical encounters in Australian healthcare during COVID-19: implications for policy date: 2022-01-15 journal: Health Res Policy Syst DOI: 10.1186/s12961-021-00812-z sha: 5a8983caffec526609ab8e1ecd2cf210650f34a0 doc_id: 773329 cord_uid: 87ske1tx BACKGROUND: Adaptive models of healthcare delivery, such as telehealth consultations, have rapidly been adopted to ensure ongoing delivery of essential healthcare services during the COVID-19 pandemic. However, there remain gaps in our understanding of how clinicians have adapted to telehealth. This study aims to explore the telehealth experiences of specialists, based at a tertiary hospital in the Hunter Region, and general practitioners (GP), including barriers, enablers and opportunities. METHODS: An interpretative qualitative study involving in-depth interviews explored the telehealth experiences of specialists, based at a tertiary hospital in the Hunter Region of Australia, and GPs, including barriers, enablers and opportunities. Data were analysed using an inductive thematic approach with constant comparison. RESULTS: Individual interviews were conducted with 10 specialists and five GPs. Key themes were identified: (1) transition to telehealth has been valuable but challenging; (2) persisting telehealth process barriers need to be addressed; (3) establishing when face-to-face consults are essential; (4) changes in workload pressures and potential for double-up; (5) essential modification of work practices; and (6) exploring what is needed going forward. CONCLUSIONS: While there is a need to rationalize and optimize health access during a pandemic, we suggest that more needs to be done to improve telehealth going forward. Our results have important policy implications. Specifically, there is a need to effectively train clinicians to competently utilize and be confident using this telehealth and to educate patients on necessary skills and etiquette. Adaptive models of telehealth (via telephone consultation, email or videoconferencing) have been rapidly adopted to ensure ongoing delivery of essential healthcare services during the COVID-19 pandemic [1] . Telehealth is the use of information and communication technology applications to provide health services, expertise and information over distance, geographic, time, and social and cultural barriers [2] . The increase in the uptake of telehealth has been unprecedented during COVID-19, and there is wide scope to consider how to integrate telehealth into routine practice going forward. Telehealth consultations are likely to continue while we live with COVID-19 and the risk of other pandemics. Beyond these emergencies, telehealth may also have Open Access 20:9 a role in providing timely care for people with multiple chronic complex conditions and people in hard-to-reach communities [3] . Changing to a telehealth delivery mode requires clinicians to navigate a different environment to attend to clinical tasks. Telehealth consults necessitate a greater emphasis on communication and skilled information exchange to effectively engage, activate and facilitate patient self-management [4] . Known challenges to the uptake of telehealth have included changes to professional roles, workflow and relationships [5, 6] . Additional barriers to telehealth include assessing a patient's needs, technical/legal issues related to sharing protected health information, equipment limitations and integrating telehealth into existing healthcare processes [7] . Clinical concern stems from evidence that a lack of confidence in telehealth and associated technology creates a barrier to its effective use among home health nurses [8] , physicians [9] and counsellors [10] . Further, the diversity of platforms and providers has led to documented inconsistencies in care [11] . Central to the context of this study is evidence of a threefold increase in the number of outpatient telehealth consultations at the John Hunter Hospital, a tertiary hospital in the Hunter Region, in March 2020 compared to the equivalent quarter in 2019. Data also highlight that, despite the Australian Department of Health recommendation that video consults be used as the primary mode of contact and that telephone should be used only when video consults are not possible [12] , approximately 90% of Australian telehealth consultations in 2020 took place over the telephone [13] . In order to understand the complexity of a rapid transition to telehealth management and how clinicians have approached clinical interactions and decision-making, this study aimed to explore the telehealth experiences of specialists and general practitioners (GP). Such understanding is critical if we are to improve and sustain quality service delivery to patients using telehealth, translating telehealth into a broader system of care with the methods and tools required to support it. Qualitative research investigates the subjective nature of social reality and the relationships between individuals and the institutions and society in which they live [14] . This qualitative study employed the use of semistructured interviews and was informed by the Consolidated criteria for reporting qualitative research (COREQ) checklist [15] . Hunter New England Local Health District specialists based at the John Hunter Hospital (JHH) and John Hunter Children's Hospital (JHCH) and GPs who provided outpatient and community-based services were eligible for inclusion. Representation of the different outpatient speciality clinics at the JHH and JHCH was sought. Participants were invited to participate by response to an email distributed by their heads of department and the director of a large, local general practice, including detailed study information. All participants provided written informed consent. Recruitment occurred between August and November 2020. Approval for this project was obtained from the Hunter New England Health Human Research Ethics Committee (2020/ ETH01732). Semi-structured interviews (specialist n = 10, GPs n = 5) were conducted by a single interviewer (JW) using an interview schedule [16] . Interviews began by asking participants to share their "story" of transition to telehealth, and subsequent questions explored their experience of clinical interactions and decision-making using telehealth, including perceptions of benefits, barriers and opportunities (see Table 1 ). The semi-structured nature permitted flexibility for participants to elaborate upon or cover important topics that would not have otherwise surfaced [17] . Identified themes informed continuing data collection, and sampling continued until thematic saturation (two co-coders agreeing that no new themes were emerging) was achieved. Semi-structured interviews, ranging from 30 to 60 minutes, were recorded with the participant's permission and transcribed verbatim with identifying data removed. Two authors (JW, JB), one an occupational therapist and the other a gerontologist, coded data using an inductive thematic approach [18] . At the level of initial coding, both authors read the transcripts multiple times and made notes. Transcripts were then coded line by line, describing and interpreting emerging categories and searching for differences and similarities. Following team discussion, the primary author developed a single codebook, and each code was issued with a four-letter label or code to facilitate data retrieval between the transcripts (for example, symptoms of confidence was labelled "CONF"). The next step involved examining the relationship between codes in the context of the research question in order to form themes. Consistency of findings was upheld through discussion of interpretations between researchers to confirm codes and categories. Any differences in researcher perspectives were resolved by negotiation and, if necessary, regrouped and recoded until consensus was reached. New codes were then fed back into the analysis to cross-check codes and themes and develop an overall interpretation of the data [19] . Trustworthiness of our data was achieved using several strategies, including immersion in data, reflexive analysis and peer debriefing [20, 21] . These strategies ensured that the researchers remained open to the data and did not demonstrate bias during the data analysis as a result of preconceptions inherent in the researchers' clinical status and experience [20, 21] . Coders captured exemplary quotes supporting each theme. Clinician demographics are outlined in Table 1 . Ten specialists including geriatricians, interventional cardiologists, general physicians, neurologists, endocrinologists, paediatric specialists and five GPs participated in this study. Limited participant characteristics are given to protect anonymity. This programme of research identified key findings across six areas: i. Transition to telehealth has been valuable but challenging. ii. Persisting telehealth process barriers need to be addressed. iii. Establishing when face-to-face consults are essential. iv. Changes in workload pressures and potential for double-up. v. Essential modification of work practices. vi. Exploring what is needed going forward. The experience of transition to telehealth varied among participants. As this was a tertiary referral hospital, many specialists already provided telehealth services to designated rural and remote local government areas. Likewise, GPs reported that telehealth "is something that we have always done… [we were] just never reimbursed for it. There has always been calls at the end of the day, conversations discussing results, follow-ups that aren't face to face but are urgent. You know, there is a role for those" (Participant [P] 13, GP). However, many participants reported feelings of "heightened anxiety" (P4) when trying to monitor and implement "constantly changing" (P10, GP) government directives in response to COVID-19. Specific challenges related to reading and responding to large amounts of communication received from the workplace and government about required work practice changes. For most participants, the transition to telehealth reportedly happened "overnight" (P4, S) and with limited forewarning, which meant that essential processes and infrastructure were not in place. Participants reported a lack of access to essential equipment, including phones with a speaker option, computers with video capacity or multiple screens, and adequate outgoing phone lines. In many cases participants ended up buying and using their own equipment. Most participants experimented with different modes of communication during the transition to telehealth. Over time, most participants opted to conduct phone consults, as videoconferencing modes were considered unreliable and required extra time to set up, and often failed, which often led to swapping to the phone. Patient familiarity with different telehealth modes was perceived to vary, irrespective of age. Participants indicated that transition to successful telehealth consults was closely linked with patients' familiarity with and access to the various modes of telecommunication using video features. Numerous factors were identified as barriers to engaging with telehealth. Most notable was the significant time required for staff, typically administrative staff, to schedule appointments in both hospitals and GP practices. This required knowledge of the modes of telehealth that patients had access to, as well as the correct patient contact details to enable login. Participants often spent extra time helping people access programmes and problemsolve telehealth access issues. One of the main constraints is technology… the patient needs to be primed, and that person may or may not have the ability to prime themselves to get on [telehealth] . It takes about 10 minutes for us to get the person prepared, and 10 minutes is a long time for us to waste on, and in a busy clinic, when you have 30 patients coming, a lot of people are waiting. We are running late by an hour and a half, I then have to invest 10 minutes of my time to get this person prepared. It was very unsatisfactory re coordination aspects. (P15, S) The initial nature of the booking system was ad hoc and "not clearly defined" (P5, S), reportedly leading to errors and confusion. Scheduling of appointments and dealing with a virtual waiting room was confusing and problematic for both participants and patients, and the absence of a system to keep patients updated regarding their appointment meant that patients were often not available at the negotiated time, especially if participants were running late or early. Internet connection issues were common to participants and patients, which had the potential to create significant delays. Overall, patients were more likely to lack enough data or bandwidth. There was a perceived reliance on family or carers to facilitate a consult and help provide data, which was considered less than ideal and likely to create additional financial burdens. However, government directives often meant that "family members weren't there [to help], as they would have been normally" (P1, S). In contrast to the commitment and preparation required from patients to attend a face-to-face appointment, participants expressed frustration that patients appeared to place less importance on preparing for and attending telehealth consults, for example, by adhering to appointment times and environments that were free of distractions. Several clinics had existing or had developed processes/education to help patients set up and engage with a telehealth appointment, such as how to download programmes, who to call for support, and ensuring a quiet space/room with few distractions. However, participant reports suggested that patient responsiveness to this support, which aimed to facilitate a quality consult, was variable. Furthermore, many patients did not come prepared for their telehealth appointment by obtaining essential pathology or scans before a scheduled consult, as they would do in a face-to-face consult. This not only created significant delays and double-up when appointments needed to be rescheduled, but also placed patients at risk when areas of concern were not investigated in a timely manner. Many patients also attempted to participate in a consult when distractions-which were previously minimized during a face-to-face consult-were present. Distractions were wide-ranging, such as when children were present at home or in a car, or when in a busy/noisy environment such as a shopping centre. In these scenarios, clinicians often terminated and rescheduled the appointment, especially when issues concerning confidentiality were evident. I had a consultation with someone who was in the middle of a paddock and, you know, we have had conversations with people that were shopping … we are not going to have this conversation. This is, you know, confidential stuff. (P8, GP) Establishing when face-to-face consults are essential Assessment accuracy All participants preferred to see new and complex clients face to face due to the imperative for obtaining a clear history, undertaking physical examinations and establishing rapport. Participant confidence in dealing with an incomplete picture varied such that some experienced greater anxiety. Most participants arranged for a patient to come in for an in-person consult if there were any concerns; however, the waiting list was often more prolonged for specialists. For some, concern stemmed from putting interim measures in place or delaying treatment until a patient could be seen in person. You may decide not to embark on treatment straightway, to see how they went, whereas if you had seen them in person, you would likely start a treatment more immediately. (P1, S) Participants also expressed concern that patients were minimizing their issues over telehealth consults which was often linked to them not wanting to be a burden during a challenging time. Some participants expressed concern at the potential to miss aspects of an assessment, since telehealth relied on patient self-report of symptoms rather than observation. Observation and physical assessment were integral to a consult, including noting social aspects, unusual neurological presentations (eye movements) and movement Face-to-face communication was also deemed more beneficial when treating people who were deaf, braininjured or cognitively impaired. Similarly, participants noted that providing education and supporting patients in understanding and adhering to education regarding chronic disease management was also made difficult when face-to-face communication was not possible. In these clinical scenarios, participants preferred to offer an in-person consult. Several critical care scenarios were noted where the inability to see someone face to face had the potential for overlooking patients at risk, particularly children and the elderly. Specifically, there was a need to assess patients at risk of abuse and to be able to create a separate time and space where the patient and family could be spoken to separately. Adequately dealing with abused patients and patients with mental health issues reportedly required a close therapeutic relationship and the time/opportunity to adequately deal with any emergent distress. All participants acknowledged the difficulty in detecting patient distress and providing support through telehealth, especially telephone, and that this was a potential barrier to telehealth. Developing a therapeutic relationship through telehealth was problematic and a key barrier reported by all participants, although not insurmountable. Telehealth, even with video capacity, made it difficult or delayed the ability to engage with a patient, read body language, respond to communication cues, and engage in conversation that allowed for a relationship to develop as well as elicit helpful supporting informative, for example, regarding socialization. In most scenarios, however, patients were seldom given the choice of telephone or video. there are other cues that will allow them to know that you are ready to ask another question or perhaps to ask something more on that subject. You cannot easily do that on phone. (P6, S) Participants also felt that patients were more likely to provide additional, valuable information during an inperson consult, often when talking informally. Many GPs perceived that patients "feel more at ease to bring up other complaints they might not have thought were a big deal, and sometimes they are not. But other times, you know, it might be something that concerns us more than the patient. Mental health is a big one as well. There are a lot of times where people will come in face to face for a script or some other condition, and then you end up having a good chat about their mental health. I would not get that over the phone at all" (P11, GP). Telehealth was reportedly a time-consuming process, and extra time was taken in the initial stages to accommodate new processes and workflow issues. For example, administrative staff needed extra time to set up appointments, problem-solve patient access issues or rebook appointments. Participants indicated that while telehealth appointments were shorter in length, it was common to spend additional time before and after a consult. For example, a significant amount of time was spent compensating for a lack of information, thus requiring time to review reports and referrals prior to a consult. Similarly, additional work in the early transition to telehealth often required participants to spend extra time, for example, writing lengthy letters to GPs to ensure adequate followup and to outline any assessment omissions, ordering/ faxing tests and scripts, and emailing or phoning GPs or other staff with instructions or for verification. That is a disappointing aspect of this whole coordination of telehealth that we have to ring the pharmacy, we have to ring the GP practice, we have to ring the pathology, we have to then send the scripts to this place, ring and tell them that the fax is coming. (P15, GP) Shorter consults that were not face to face also had the potential for errors if concentration was lost during a busy clinic, especially when trying to take in information from various modalities. It is far easier to make a mistake on telephone conversation, because the information that is coming is far less. So, I think telephone consultations are pretty hopeless. For instance, once I got the medications wrong. I must have been concentrating on something else. And they are much quicker… telephone conversations are like a quarter of the time. (P3, S) We might also make mistakes. I have seen that sometimes you call the wrong person and you go through the consultation and then you realize you are in the wrong folder. (P15, S) Overall, many felt that telehealth resulted in a doubling up of their time and efforts. All clinicians readily modified their work practice and communication style through trial and error in response to adopting a telehealth practice. For some this meant modifying standardized assessments for use over the phone such as abbreviating the Mini-Mental State Exam (MMSE) cognitive assessment to obtain some semblance of a cognitive screen, because "there aren't many validated tools for cognitive assessment over the phone" (P2, S). Other strategies reportedly included asking more detailed questions in order to elicit correct information and compensate for a lack of visual cues or relying on family and carers for clarification. One clinician with extensive experience with telehealth reportedly increased the number of pauses to allow a patient to speak, since the nature of telehealth often meant that people spoke overtop each other. All clinicians reported that telehealth was inferior to face-to-face consults but had a role going forward. Telehealth was considered most appropriate for patients where there was an existing therapeutic relationship, and for "follow-up things or for things where it is a very easy diagnosis, you know" (P8, S). Participants greatly appreciated being remunerated for time spent on the phone providing follow-up, confirming an ongoing treatment plan or writing scripts. Likewise, there was a perceived benefit for an initial consult where blood work, scans, and so on were requested prior to further assessments or prior to a well-defined procedure. These had a mutual benefit for patients in not requiring them to travel, wait for long periods and pay for parking. Specific benefits were noted for children at risk of missing a day of school at a time, significantly disabled patients where transport was difficult, and older people who had the potential to experience fatigue and confusion. We However, participants emphasized that if increased telehealth services were expected, then more infrastructure was needed regarding equipment and staffing. We are just expected to absorb it. That is the difficult part if you expand telehealth because telehealth can go anywhere, but at this end somebody needs to enhance us, and we have not had any enhancement. (P15, S) Telehealth also provided the scope to provide continuity of care by streamlining services in facilities for the aged, supporting palliative care and other complex care and social issues, such as busy mums. As with other countries, telehealth has enabled Australians to stay connected with the healthcare system during COVID-19. Participant reports highlighted that the use of telehealth has increased dramatically. Consistent with international reports, convenience benefits were noted in maintaining health access for patients and reducing the burden of travel and waiting times [22] . Likewise, participants were reimbursed for essential work they were already conducting over the phone [23] . Echoing previous research, this study identified limitations of telehealth which resulted in the delivery of care where participants experienced challenges with booking processes and internet connection, and poor patient computer literacy [24, 25] . These may be magnified in patients from low socioeconomic and culturally and linguistically diverse backgrounds [26, 27] . Overall, participants were required to compensate for a deficient clinical history, struggled to establish a therapeutic relationship, and spent extra time post-consult to follow up on referrals and scripts. Communication barriers due to the lack of nonverbal communication and information exchange in telehealth have been well established [28] . Evidence shows that up to 55% of the impact of consultation is attributed to visual and nonverbal communication [29] . In addition, evidence shows that patients frequently misunderstand health information given by phone [30] . Poor health literacy is exacerbated in people with mental health issues [31] and sensory conditions such as altered vision and hearing [32] . A key finding of this study was that participants selfinitiated modification of work practice to ameliorate for potential communication deficits, such as more detailed questioning and seeking verification. However, clinicians accepted that clinical care given to patients using telehealth was different, and often delayed, in comparison to care given face to face and that it was difficult to establish a therapeutic relationship. Therapeutic relationships are complex and subjective, requiring patient and therapist collaboration to optimize outcomes, and previous research highlights the need for training [33, 34] . Furthermore, while telehealth competencies exist in the provision of telehealth across various professional groups [35] , few clinicians are formally trained to deliver their professional services using telehealth [36] . Consistent with growing evidence, we posit that the effective use of telehealth requires appropriate education of patients and clinicians about the safe and effective use of telehealth for the provision of high-quality patient-centred healthcare [37] [38] [39] . Previous research has demonstrated that patients are often satisfied with telehealth, the quality of care and convenience [40, 41] . A recent systematic review identified barriers and facilitators to telemedicine [42] , with key barriers including access to and quality of technology, lack of seriousness, difficulty expressing difficult emotions, poor body language, and communication and scheduling conflicts [42] . However, results from our study suggest there was a perceived lack of respect for and preparation before a telehealth consult among patients, which led to unnecessary duplication of consults and delayed assessment. Indeed, previous research suggests that people from rural areas, those with low literacy or low socioeconomic status, or those from culturally and linguistically diverse backgrounds find telehealth the least accessible and may benefit from education [43] . All participants acknowledged that a telehealth appointment was better than no appointment at all. However, going forward, telehealth services were deemed to require improved software which provided booking efficiency, data security and data transfer. With greater expectations of seeing people who lived in closer proximity came the need for more staffing and infrastructure to support this. As supported by a recent systematic review of the role of telehealth during COVID-19, improved administrative processes, such as having a triage system, would allow for more accurate identification of people who needed to be seen person [44] . While our approach provided the opportunity to obtain diverse perspectives on what current and future telehealth services should look like, the use of purposive sample may have resulted in an invested sample. Likewise, our sample was small and selected from a single urban location. We also did not capture the patient perspective. Future research should explore the patient perspective, including people from culturally and linguistically diverse populations. In addition, research should be prioritized to ensure the consistent quality of telehealth consultation. With the unprecedented increase in the uptake of telehealth, there is an opportunity to integrate telehealth into routine practice, potentially improving inequities and inefficiencies in the delivery of care for patients. This study highlights barriers to establishing a therapeutic relationship using telehealth, which was compounded by the lack of visual and nonverbal communication, internet connectivity and computer literacy. A further challenge was a perceived lack of respect for and preparation before a consult by patients, which led to further delays in the provision of timely care, such as the need to rebook appointments. Our results suggest several policy areas for attention to support telehealth, including further investment in information technology infrastructure across health services administrative support to facilitate changes in practice and workflow. Effective communication is paramount to delivering patient-centred care, and cultivating this skill is a vital component of telehealth. Given that the use of telehealth, both phone and video, is increasing and is likely to continue while we live with COVID-19 and the risk of other pandemics, we would point to the importance of promoting communication competency through training of health professionals and patients in the use of telehealth. Covid-19 and health care's digital revolution State of telehealth 20:9 • fast, convenient online submission • thorough peer review by experienced researchers in your field • rapid publication on acceptance • support for research data, including large and complex data types • gold Open Access which fosters wider collaboration and increased citations maximum visibility for your research: over 100M website views per year submit your research ? 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JW drafted the manuscript for publication, and JB and TW contributed to the content and revision of the manuscript. JW managed revisions, literature and checking of the manuscript. All authors read and approved the final manuscript.