University of Notre Dame Center for Ethics and Culture Public Policy Fellow Mary O’Callaghan will be a featured speaker at a panel discussion about Down syndrome hosted by the Holy See’s Permanent Observer Mission to the United Nations on Tuesday (March 20). “No Room in Rural Villages, Cities, and Homes for Those with Disabilities? Are Girls and Boys with Down Syndrome Being Left Behind?” will take place at the U.N. Headquarters in New York City the day before World Down Syndrome Day on March 21, referring to the Trisomy 21 genetic marker that causes Down syndrome, discovered by geneticist Jérôme Lejeune.
Additional panelists at the event include Archbishop Bernardito Auza, the Permanent Observer of the Holy See to the United Nations; Mikalya Holmgren, the first woman with Down syndrome to compete in the Miss Minnesota USA Pageant and winner of the Spirit of Miss USA Award; and Chloe Kondrich, namesake of Pennsylvania’s “Chloe’s Law,” which guarantees neutral presentation of genetic testing results in an attempt to address the 90 percent abortion rate for babies diagnosed with Trisomy 21 in utero.
The event is open to the public, but a U.N. guest pass is required. RSVP for the discussion at HolySeeMission.org/rsvp20March2018.
O'Callaghan previewed her presentation in the latest episode (No. 13) of the center's podcast, "Ethics and Culture Cast," available at https://ethicscenter.nd.edu/about/podcast/.
In 2017, the Center for Ethics and Culture presented the Notre Dame Evangelium Vitae Medal to the Jérôme Lejeune Foundation, honoring the organization’s decades of care and advocacy for people with Down syndrome in imitation of their saintly namesake. The 2018 medal will be presented to Mary Ann Glendon, former U.S. ambassador to the Holy See, professor of law at Harvard Law School, head of the Holy See’s delegation to the 1995 U.N. Conference on Women and author of the landmark history of the Universal Declaration of Human Rights, "A World Made New: Eleanor Roosevelt and the Universal Declaration of Human Rights."
Originally published by at ethicscenter.nd.edu on Feb. 20.