id	author	title	date	pages	extension	mime	words	sentences	flesch	summary	cache	txt
work_tmfa3joqn5d5louxu2sa35iyfu	Letizia Ragusa	Caring and living with Prader-Willi syndrome in Italy: integrating children, adults and parents' experiences through a multicentre narrative medicine research	2020.0	11	.pdf	application/pdf	10428	1906	71	methods to strengthen clinical practices with narrative competences.29 NM research addresses the individual's experience when coping with distress caused illness experience by employing the analysis of narratives (A) to understand daily life, real needs and personal reports.27 30 33 Participants with PWS were given the possibility to express by drawing if under 5 years old or if unable PWS in relational and social contexts and addresses participants' indoor and outdoor daily activities; (C) the third caregivers and adult patients with PWS and participants' Table 3 Perspectives from PWS caregivers on the therapeutic path: quotes from narratives caregivers and PWS participants' narratives. emotion patterns and foodseeking behaviours: narratives demonstrated that underage and adult participants with PWS were aware of that. Table 5 Living with PraderWilli syndrome (PWS) in activities and relationships: quotes from narratives The PRAXIS project represents the first effort to investigate the PWS illness experience in Italy through NM by 	./cache/work_tmfa3joqn5d5louxu2sa35iyfu.pdf	./txt/work_tmfa3joqn5d5louxu2sa35iyfu.txt