id author title date pages extension mime words sentences flesch summary cache txt cord-274779-0emfl1e5 Andrews, Jinsy A. Amyotrophic lateral sclerosis care and research in the United States during the COVID‐19 pandemic: Challenges and opportunities 2020-06-05 .txt text/plain 1835 113 50 Coronavirus disease 2019 has created unprecedented challenges for amyotrophic lateral sclerosis (ALS) clinical care and research in the United States. Most of the 133 sites surveyed between April 21, 2020 and May 1, 2020 are affiliated with academic medical centers in the United States, have multidisciplinary care teams, see large numbers of patients, and participate in a variety of ALS research studies, including clinical trials. The most commonly used measure of ALS progression in clinics and in trials, the Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R), can be obtained reliably and easily over the phone or by telemedicine. The COVID-19 pandemic has created an unprecedented challenges to ALS clinical care and research. Our combined experiences of clinician-patient interactions during this pandemic will provide us with new paradigms that will likely improve the efficiency of clinical care and availability of research participation. ./cache/cord-274779-0emfl1e5.txt ./txt/cord-274779-0emfl1e5.txt