id	author	title	date	pages	extension	mime	words	sentences	flesch	summary	cache	txt
cord-012921-fvrculi6	Riedijk, S. R.	A Decade of Genetic Counseling in Frontotemporal Dementia Affected Families: Few Counseling Requests and much Familial Opposition to Testing	2009-08-01		.txt	text/plain	4433	226	47	A decade of genetic counseling of frontotemporal dementia (FTD) affected families has generated two important observations. Second, FTD at-risk counselees reported substantial familial opposition to genetic testing, which is distinct from the attitude in Huntington Disease affected families. We hypothesize that the low acceptance for FTD genetic counseling is consequential to the familial opposition and explain this within the theoretical framework of separation-individuation. In addition, the geneticist provides technical information on the genetics of FTD, the phenotype and penetrance, whereas the psychosocial counselor explores in-depth the psychological make-up and motivation of the counselee and the family dynamics with regard to the hereditary disorder, and discusses how this counselee may best adapt to either test outcome. The low uptake for FTD genetic testing may result from a high prevalence of enmeshed family structures and its effects on separation-individuation processes. Through this discussion we aim to contribute to enhanced genetic counseling, testing and enriched psychological support of individuals at-risk for FTD and their families.	./cache/cord-012921-fvrculi6.txt	./txt/cord-012921-fvrculi6.txt