id	author	title	date	pages	extension	mime	words	sentences	flesch	summary	cache	txt
cord-275069-opuwyaiv	Amram, Denise	Building up the “Accountable Ulysses” model. The impact of GDPR and national implementations, ethics, and health-data research: Comparative remarks	2020-07-31		.txt	text/plain	4875	195	42	For this reason, considering the new ethical-legal issues emerging from the scientific-technological progress that involves a daily use of health-related data, our comparative analysis will firstly discuss the legal bases for health data processing for research purposes in order to identify the critical profiles as well possible practical solutions that might help Ulysses 4.0. Some critical profiles emerge from article 9, para 4, GDPR which allows Member States to decide whether or not maintaining the legal bases provided by the EU Regulation or introducing further conditions, including limitations, with regard to the processing of particularly sensitive data, like the genetic data, the biometric ones, or those concerning health. According to the above-discussed system, the data controller (i.e. the university/research institute in person of the legal representative) shall involve the principal investigator in the data management activities, authorizing to data processing under article 29 GDPR, in order to proactively guarantee the adoption of those technical and organizational measures aimed at safeguarding the rights and freedoms of data subjects in her project.	./cache/cord-275069-opuwyaiv.txt	./txt/cord-275069-opuwyaiv.txt