id author title date pages extension mime words sentences flesch summary cache txt cord-274563-jimw6skv Fiumara, Agata COVID-19 Pandemic Outbreak and its Psychological Impact on Patients with Rare Lysosomal Diseases 2020-08-22 .txt text/plain 3524 163 50 During the COVID-19 (Corona Virus Disease 2019) pandemic lockdown, patients with LSDs on enzyme replacement therapy (ERT) missed their scheduled access to the Day Hospital to get their treatment. Methods: Based on the feeling that our patients were experiencing profound distress, we designed a structured telephone interview with the aim to evaluate how, and to which extent, the pandemic outbreak was changing their behavior and feelings about their chronic disease, the impact on therapies, and future expectations. Moreover, a striking similarity emerged between the groups regarding forced home reclusion and the profound feeling to be excluded by normal life, well-known to those affected by a chronic rare disease. Based on the feeling that our patients were experiencing profound distress, we designed a structured interview [3, 4] with the aim to evaluate how, and to which extent, the COVID-19 pandemic was changing our patients' behavior and feelings about their chronic disease, the impact on therapies, and their future expectations. ./cache/cord-274563-jimw6skv.txt ./txt/cord-274563-jimw6skv.txt