id author title date pages extension mime words sentence flesch summary cache txt news-000084 Notre Dame Patient Advocacy Initiative receives founding gift from Horizon Therapeutics | News | Notre Dame News | University of Notre Dame .html text/html 1009 32 38 Lack of understanding of rare diseases, the length of time to diagnosis, a lack of specialists and ineffective treatments are a few of the challenges rare disease patients face. Although understanding the experience of a person with a rare disease can enable improved health, faster and more accurate diagnosis and better care for individuals and families living with rare diseases, medical professionals often do not receive training to recognize a patient with one of the some 7,000 identified rare diseases. cache/news-000084.html txt/news-000084.txt